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Old 07-20-2009, 02:13 PM #11
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I am using an ointment in my eyes at night. I do the baby shampoo thing in the shower, and I am using drops during the day. I also have plugs in my ducts to prevent moisture from getting away.

My feet have stopped burning, but I have made it a point to get off them today. I have pushed myself this past week, and think I need to be kinder to myself.

Thanks for all the support.
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Old 07-20-2009, 02:31 PM #12
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Dej,
What other DMD could you use? I hate the fact that you have so many side effects on C...
take care, and keep that journal up to date for your neuro visit...
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Old 07-20-2009, 03:58 PM #13
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the relief of some of your sx's are big.
sleep is so important. it really affects your life.

i'd give it the whole 2 wks and see what you think.
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Old 07-20-2009, 04:18 PM #14
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I failed off of Beta due to a severe increase in liver enzymes. The MD said he "may" be willing to look at Avonex for me, but doubted I would survive on it, since my liver was so unhappy on Beta.

The C is not making me happy, but the side effects I guess can be survived.

I cant take LDN because of the narcotics I am on.

Rebif is an interferon, and the liver enzyme issues would stop me from getting it.

The only one left would be Tysabri. I would require a port since I have horrific access, and wouldnt survive the poking.

I am going to try to just take the next few days a bit easier than I have been. I need to be kinder to myself. I get one more week off of this med, and then we will have to decide if the side effects outweigh the benefits, or if the side effects are tolerable enough to keep going.

I HATE THIS FREAKING DISEASE!
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Betaseron 5/18/07
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Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
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