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#1 | |||
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Senior Member
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I have done both oral and IV steroids. When I did oral it was 600 mg per day for 5 days (not 25) and then a taper of 50 for 5 days, then 25 for 5 days, etc. When I have done the IV it was 1,000 mg for 3 days. So, I agree with the others that your dose wasn't high enough for MS.
Also, I never had any kind of real improvement for a week or maybe even 2 or 3. My neuro said was quite normal for it to take that kind of time to show improvement.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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#2 | |||
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Elder
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Quote:
Right now tho, my right eye hurts (not the one I had the steroids for) and I've got such an increase in the burning sensation over the weekend that my entire left leg and foot are burning now. (more than it was last night when I posted an earlier message in this thread) I feel like the improvement is going backwards...at least in my left leg. Oh, and my left hand is now more numb than it was before the steroids. I really hope there's more improvement coming soon. The burning is getting really bad. I wonder if I should take a neurontin? I'm just glad that I'm not seeing two of everything all the time now, and the vertigo let up so that I'm not walking into walls anymore.
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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"Thanks for this!" says: | Lady (07-27-2009) |
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#3 | |||
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Member
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Hi,
I should have filled in more details sorry.... the babinski isn't the only thing the neuro used to 'rule out' MS - my brain and c-spine were clear, bloods and VER. The neuro did put me on 50mg oral pred with taper a few weeks ago, but I freaked out after day 4 when i couldn't stop crying for most of the day!!! I called her and she told me to go off it - just like that. So my regular doctor told me to try the lower dose 25mg. The test with the socks on though surprised me, and she didn't do a walk test. |
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#4 | |||
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Senior Member
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Hi Freesia38,
Welcome! I know health programs in your country may be different then some of us have in the US. But I do feel that if your doctor was treating you for probable MS, then he did not test well enough, nor give you enough steroids. Perhaps it is something else and you will be happy it is not MS. My brain and C-spine were clear in an open-MRI. Then the MS specialist in NYC, ordered a closed one. It showed plenty of brain lesions. Later on I showed one brainstem lesion and one at C-2 or C-3 lesion I believe. It takes time to get a diagnosis for any Neuro disease or disorder, so you might have to see how your body is over time. He will probably check you again in a year unless you have more problems. Call him or get another doctor if you don't feel he has helped you, or if you have any more problems. Get all problems documented by the doctor and treated with something so you do not suffer. Good luck to you. ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | Freesia38 (07-28-2009) |
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