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Old 07-27-2009, 11:25 AM #1
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I have done both oral and IV steroids. When I did oral it was 600 mg per day for 5 days (not 25) and then a taper of 50 for 5 days, then 25 for 5 days, etc. When I have done the IV it was 1,000 mg for 3 days. So, I agree with the others that your dose wasn't high enough for MS.

Also, I never had any kind of real improvement for a week or maybe even 2 or 3. My neuro said was quite normal for it to take that kind of time to show improvement.
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Old 07-27-2009, 02:51 PM #2
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Quote:
Originally Posted by hollym View Post
I have done both oral and IV steroids. When I did oral it was 600 mg per day for 5 days (not 25) and then a taper of 50 for 5 days, then 25 for 5 days, etc. When I have done the IV it was 1,000 mg for 3 days. So, I agree with the others that your dose wasn't high enough for MS.

Also, I never had any kind of real improvement for a week or maybe even 2 or 3. My neuro said was quite normal for it to take that kind of time to show improvement.
This is interesting to hear. (about the improvements that may take a few weeks to show) I had improvement in my vision pretty much within the first week after IV steroids (this is my second week since steroids...the first week started last monday.) I had improvement in the numb and tingly sensations around the same time.

Right now tho, my right eye hurts (not the one I had the steroids for) and I've got such an increase in the burning sensation over the weekend that my entire left leg and foot are burning now. (more than it was last night when I posted an earlier message in this thread)

I feel like the improvement is going backwards...at least in my left leg. Oh, and my left hand is now more numb than it was before the steroids.

I really hope there's more improvement coming soon. The burning is getting really bad. I wonder if I should take a neurontin?

I'm just glad that I'm not seeing two of everything all the time now, and the vertigo let up so that I'm not walking into walls anymore.
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Old 07-27-2009, 04:27 PM #3
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Hi,

I should have filled in more details sorry....

the babinski isn't the only thing the neuro used to 'rule out' MS - my brain and c-spine were clear, bloods and VER.

The neuro did put me on 50mg oral pred with taper a few weeks ago, but I freaked out after day 4 when i couldn't stop crying for most of the day!!! I called her and she told me to go off it - just like that.

So my regular doctor told me to try the lower dose 25mg.

The test with the socks on though surprised me, and she didn't do a walk test.
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Old 07-27-2009, 06:30 PM #4
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Hi Freesia38,
Welcome!
I know health programs in your country may be different then some of us have in the US. But I do feel that if your doctor was treating you for probable MS, then he did not test well enough, nor give you enough steroids. Perhaps it is something else and you will be happy it is not MS.

My brain and C-spine were clear in an open-MRI. Then the MS specialist in NYC, ordered a closed one. It showed plenty of brain lesions. Later on I showed one brainstem lesion and one at C-2 or C-3 lesion I believe.

It takes time to get a diagnosis for any Neuro disease or disorder, so you might have to see how your body is over time. He will probably check you again in a year unless you have more problems.

Call him or get another doctor if you don't feel he has helped you, or if you have any more problems. Get all problems documented by the doctor and treated with something so you do not suffer. Good luck to you.
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