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Old 07-28-2009, 12:11 PM #1
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Aarcyn Aarcyn is offline
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I have had IV steroids twice about 4 years ago. Symptoms never went away but it might have stopped a bit of the progression.

Don't stress about it, give it time. If you are on an exacerbation, you need to ride it out. Keep a diary about what is happening to document the symptoms and in a week, call the neurologist for another appointment.

Self diagnosis is not good and doctors do not always handle neurological problems quickly. You are a unique person. MS is not necessarily an easy call for a doctor. Sometimes it needs time.

I am sorry you are going through this. I wish there was a good answer. Ask your doctor for something that may help the symptoms, like neurontin.

My hope is that once you document your symptoms, the doctor will be better able to figure it out.
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Old 07-28-2009, 12:22 PM #2
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Like Aarcyn, I have only been on IV steroids 2 times in the past 3 years. In fact, I have only been on IV steroids twice since being diagnosed 3 1/2 years ago. I did not notice a decrease in symptoms right away. It still took a while for the symptoms to calm down.

I don't have the internal theromstat issue so I have no advice for you on that. The sensory issues I do have and for me, the Neurontin helps that for the most part. However, I have burnt my left hand/arm several times without feeling it and had a big delay in the message reaching the correct part of my brain. I can't feel hot/cold accurately with my left arm/hand (but I can definitely feel a pin prick).
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