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Old 04-29-2008, 06:05 PM #24
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I also have the "joint pain" Karilann describes, especially in my hands, but in my legs too. It comes and stays a few days, becoming progressively more painful and then one day "WHAM" It's gone completely.

There are times it feels as if my hand or whatever is being affected is actually broken. After the initial pain is gone I will have what I call systematic cramps for a few days, where it spasms in waves, but nowhere near as painful as the initial pain!

The doc said...spasticity...and told me when it happens to up the baclofen for a few days and then taper down when it goes away. Stretching also helps, along with soaking in hot water or doing a hot wax bath on the affected area, but only for a few minutes.

It bites when it's the hands. Even holding the steering wheel hurts like hail! Forget carrying anything that has any weight to it. When it's a leg...I may as well just sit down cause I can't even carry ME!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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