Sorry you're feeling so poorly, Ruthie. I'd definitely keep a diary of my symptoms so I could take it with me to my next appointment. I'm famous for forgetting the one very important thing I wanted to discuss.....

If you cannot see the Neuro right away I'd at least call and report my worsening symptoms so they can make them a part of your records. Once hearing them they might move your appointment up for you.

Good luck!

Your suggestions are spot on. It is always better for the patient if she can get to the doc when the symptoms are visible and not after they disappear.

gmi

Thank you all, I will call them today.

That's what I was gonna say. My neuro is always booked 3 mos out, so I never can get in sooner. But I can call and have them note my issues. I'd rather he actually saw firsthand.

One person - who could not get in when she wanted/needed - said she actually just went and sat in the waiting room until they finally made time for the doc to see her. Might not be a bad idea for some of us who just can't do it any other way I guess.


Kitty - spot on. Write the important stuff down.

Ruthie, do you have a PCP? Sometimes they can see you sooner and help with relief for your symptoms, while you wait.

Patience is a virtue...one of which we, (PwMS), are NOT blessed..

Do call you Neuro and your Optho and inform them of your pain...now....maybe, they will squeeze you in.

Feel Better..

Well I was able to get an apt with the opthamologist this week but the neuro's next avail is the 17th. Still better than October. But she did ask what the sx were and wrote them down for my neuro.

Hi Ruthie,
Welcome!
When your eyes or your mobility worsen or get a new problem, always call the doctor to get it documented, and try to make an appointment too.

These two parts of the body are so important you can not let it go without being checked. As for wobbly legs, in the meantime, try to stand with your legs a little wider apart. That gives a better stance and balance.

I have a vitreous detachment that is being monitored. I don't believe it is MS related. I have no pain but I do have a slight fog to look thru. My vision has not changed. I have had Optic Neuritis and this feels different to me. We are all different though.Have you eye doctor check your Optic nerve for pallor or swelling.

If your MRI is clear it may be a while before any diagnosis of any kind can be made. Some of us it took years, other very quickly. But don't neglect your eyes for any reason. Good luck to you. Let us know how you make out at the eye doctor.