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Old 08-03-2009, 02:32 AM #1
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Default Another curve ball from this miserable disease...

Really thought after all these years, I'd seen everything. But no, something new and different -- at least I think it's from the ms. What do you all think? For about three weeks now I haven't been able to eat very much (that could be a good thing) because as soon as I eat, the stomach cramps begin. Pretty soon they intensify into feeling like a stomach virus.......and diarrhea.

It's bad enough dealing with bladder incontinence, but now "bowel" incontinence too???? I'd say that's really unfair!!! Of course being in this "chair", it's usually too late when I get to the bathroom and.....well......you can imagine the rest. I must have been a really bad girl to have to live my "golden years" this way.

Do you think this is from the MS or something else? With fibromyalgia, IBS is quite common, so maybe? I'm just exhausted from living this way. Almost forgot......I also have a 'fissure', so the diarrhea gets that all stirred up too, bleeding all over the place. Then, taking warfarin (coumadin) it just makes matters worse. AAAARRRRRGGGGGHHHH!!!! Enough all ready!!!!!! Wouldn't it be wonderful to be "normal" again!?!

Any help/ideas would be appreciated!! Thanks, my good friends! Hope I didn't gross out anyone.
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Old 08-03-2009, 04:45 AM #2
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Judy!

So sorry you're dealing with this I hope you find an answer soon and that you'll be feeling better!

Niko


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Old 08-03-2009, 07:42 AM #3
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oh Judy! I am so sorry you are having this issue. I dont have any answers for you other than to suggest you speak to your MD. perhaps there is a med you can take or other things you can do for comfort measures. I hate this freaking disease. I just hate it! I hope you feel better soon.
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Old 08-03-2009, 09:25 AM #4
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((((((Judy))))))..you didn't gross me out, but you did make me cry... I hate this damn disease with a passion..Grrrrrr..

What does your Doc say...anything? With all our modern medicine and techs, you shouldn't have to suffer these attacks of your body and your mind..
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Old 08-03-2009, 09:27 AM #5
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(((Judy))) Count me in that club. Well, sort of. I don't have the diarrhea or incontinence. I do however have stomach issues. Although it doesn't happen all the time, I am on what I call the 3 bite diet, 3 bites and I am full. My stomach cramps up when I eat to the point you can actually see the outline of my stomach. I also experience nausea with it as well - not sure if that is pain related or because the stomach is freaking out.

Years ago I had an EGD done and the doctor said that all the nerve endings in my stomach were very sensitive. They thought I had an ulcer. Little did we know it was the MS.

During spinal lesion flares, this becomes much worse. The only thing that I can tolerate as far as eating is "smoothies." I make all sorts of smoothies. Some with fruit, some with veggies (cucumber smoothies are awesome). These are easy on my stomach.

On a regular basis, I have learned through experience what I can eat and what I can't. Basically, I eat things that are easier to digest.

Talk to your neuro about this. There are many medications out there that can help you. (I'm not on any). Hang in there and know that you are not alone on this one.
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Old 08-03-2009, 09:52 AM #6
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I've also had tummy troubles recently. Seems things that I once could eat with no problem are causing me pain. I never, ever used to have heartburn but I've had it several times in the past few weeks. I've also experienced things "going right through me" after I eat. That's never happened before unless I had a virus or something.

I'm trying to keep track of when it's happened and what I've eaten so I don't make the same mistake twice. So far, ice cream seems to be the culprit most of the time. I don't wanna give that up!

I hope you feel better soon, Judy. I agree with the others.....I hate this stupid disease more and more each day.
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Old 08-03-2009, 10:15 AM #7
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Jim has stomach issues too but he's controlling them with Nexium and stool softners. The bleeding is a concern since your on blood thinners. I'd call the doctor and suggest seeing a gastro to make sure everything checks out.
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Old 08-06-2009, 10:49 AM #8
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Judy, I'm so sorry you are going through all this grief!

I'm going for my first colonoscopy next month. My doctor doesn't use Versed, but I can't remember what he said they use. He promised me that I would be totally out for the procedure.

I was told at age 50 that I should get a screening colonoscopy. I'm 58, so it took eight years to build up the nerve to finally have one done.

Judy, maybe you should go in for a colonoscopy or other exams to find out what's causing this and hopefully get it fixed.

Sally, I'm so very sorry about your husband.
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