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#1 | |||
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Magnate
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Hello, pud's friend.
Heat effects each of us differrentlt and some don't even have a problem with heat. For me: Think of a flower that has been without water in heat, it droops, wilts but when you give it water it perks back up. That's me. Put me in the heat and I wilt (no energy), I feel weak and my legs feel like lead. If I spend some time in air condtioning I start to feel better. The problem I have is heat will trigger my exacerbations. I hate July and August. If I make it past August without an exacerbation I have a good chance of being fine, at least until next year when it starts all over again. I am also cold sensitive ![]()
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Dx RRMS 1984 |
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#2 | |||
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Elder
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I have lesions on my optic nerves, and suffer from the heat visually as well. I have Uhthoffs syndrome (sp?) and when I over heat my vision goes wonky. i dont go blind per se, but I get fuzzy vision. Lets say I was out for a nice brisk walk, and got over heated, it would be like someone smeared vaseline on my glasses. I could tell you that a large golden colored car past me, but couldnt tell you what make it was, nor the license plate of it. I can make out the blur of where the road is, and where the grass is, but cant see sticks or trash that I am about to step on, unless its brightly colored. I am told this is rare for MS patients, and some have it with or without lesions.
Normal everyday heat makes me feel like I have run a marathon. my body wont co operate. I go into slow motion and feel like I gain 100 pounds. I feel wrung out, and if I dont cool off I can get confused, and disoriented. I will say that being on copaxone (for me) makes these sx worse. When I was off copaxone, I tolerated heat a bit better, and had more energy. I will admit it was beautiful weather during my 2 weeks off, so that is hard to judge. I find if I push myself past the point of comfort, I can end up with diarrhea, tummy cramps, confusion, severe exhaustion, my legs turn to jelly and feel like they wont hold me up, and I will spend the next 3 days recovering from the event. It will be like I am recovering from a marathon. btw the humidity is what really throws me. I can deal with some heat, but make it muggy, and I go down like a sack of potatoes. It varies for each person. Some folks just get wobbly, and tired. Others get the full boat of sx like me.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#3 | ||
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Junior Member
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Funny thing up until this summer the heat has never bothered me... Let me get cold and it will take me 2 days to warm up. But just this year I've noticed that any energy spent in the heat will result in a few days of dizzy spells and the overall feeling of being drained!
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"Thanks for this!" says: | notasperfectasyou (08-17-2009) |
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#4 | |||
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Member
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Quote:
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"Thanks for this!" says: | dmplaura (08-18-2009) |
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#5 | |||
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Grand Magnate
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Makes perfect sense to me that a high dewpoint would make MS sx worse..After all, when the humidity's up, your body can't cool itself off. Heat index is higher than air temp.
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#6 | |||
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Magnate
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Quote:
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#7 | |||
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Grand Magnate
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Hot + Humid = Ragdoll
I get really weak on hot and humid days. It's like someone took my bones and replaced them with rubber bands.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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#8 | |||
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Member
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Russell Johnson did a chart of sorts that compares humdity and temperature in one of the papers I saw a long time ago. The bottomline was that heat is a key variable as most suspect, but changes in humidity had a greater impact. But, it's really a sliding scale for both of them with humidity being the more sensitive one. Ken
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