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#31 | |||
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Grand Magnate
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![]() I would love (and prefer ![]() ![]() If not that, maybe an anicdote ... but not one that just takes care of the immediate problem (attack/flare). A cure to me would be that it stops the disease in it's tracks, whenever MS is discovered. So, it would NOT be like insulin for diabetes (which means the underlying disease still exists, but it is hopefully "managed" to some degree). The reason I don't like that option is because we all know that it is next to impossible to assess whether these treatments are working to any degree for sometimes many, many years ... I want it to STOP, no if's, and's or but's!! I wish there would be no damage to contend with after the first event, and if they were able to stop MS in it's tracks immediately after dx, in most cases there wouldn't be. However, for those of us who have had it for years, I think it is unrealistic to think that our nerves could regenerate to pre-MS standards. For me, the ceasation of progression is a cure. For those who are just starting out with MS, that would mean they didn't accumulate any/much anyway, so that would also be a cure. We can do poll's on here, Ken. I am going on memory, but I think the option is at the bottom of the screen when you start a new thread. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | tkrik (09-03-2009) |
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#32 | |||
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Senior Member
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Polio is supposed to be cured. They have a vaccination to prevent it. There has not been many new cases I believe, at least in this part of the world.
But I have friends from my childhood, who are still damaged from the disease, that they got as a child or teenager. Some in iron lung machines died. ![]() Then we have the Post-Polio Syndrome. So when is a cure really considered a cure? They never did find a definite cause for the Polio in these people, and they never really took away their past damage or treated it. So there is really no answer to be found in the words, "What would it take?" To me it would mean: When MS is wiped off the map of the world, a disease of the past 21 centuries, that no longer exists in the world of the 22nd century perhaps? MS has been around so long now, probably since time began, people died young back then, before they got any full disease, or a name for it. Until Charcot. There is not enough research, not enough treatments with a safety factor, the cause and cure are yet to be found. We are only covering a huge wound with a Band-Aid, IMO.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | gonnamakeit (08-31-2009), pud's friend (09-01-2009) |
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#33 | |||
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Wise Elder
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Cherie - Key word - managed. I am not "cured" but at the present time I am "managed," just as you described for those on insulin. The underlying disease is still there and, as I mentioned, can rear its ugly head at any moment. But for the time being I am managed.
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#34 | |||
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Member
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I think it's great that you feel you have regained something that was lost. While that is not cured, that's a big deal. Re-wiring is an interesting concept. it says/suggests a lot. I've seen papers about re-wiring, is this what your doctor is suggesting? Do you think it's related to any supplementation you are taking? Improved walking from regrowth is very cool. Ken |
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