just to let you know Im thinking of you.

I dont have any experience of the treatments that you have recieved. But as you have already found out if one of us can't answer a question, theres bound to be others that can!

Welcome to the Forum.

Love
Rach

AnnieB3,
I usually drink so much water before during and after the IVIG's that I am constantly running to the bathroom! I haven't drunk much water over the past few days or eaten much at all because I feel so sicky. I guess I need to start drinking more water again. I don't have a blood pressure cuff but was planning on getting one asap. I take blood pressure medication that has been adjusted again and my doc told me to get one so I check it often.

I bought just the B-12 by itself. I actually bought two bottles one 500mcg and the other is 1000mcg because I wasn't sure which one to get. I took the 500mcg the day before yesterday and the 1000mcg yesterday. Now that I look at the bottles, the 500mcg bottle says that it is Natural and the 1000mcg bottle doesn't say that. I don't see caffiene listed as an ingredient but there is a lot of other things in it that isn't listed on the 500mg pill bottle. I'll have to find a 1000mcg natural pill because I really felt a little too strange with the pill I took yesterday and I didn't like it. I could just be sensitive to everything both physically and mentally right now because of the state I am in. I don't know.

I do know that I need to start meditating because I am only going to make myself worse if I don't calm down. I forget how to handle MG when it stirs back up again after being under control for so long. I just hate when this happens.

Thanks everyone and I'm sure you will hear from me quite often.

Thanks Rach

Okay Annie,
I have been drinking quite a bit of water since I read your post and decided to check my temperature a few minutes ago...... It is back up from 96.8 to 98.4 and I don't feel as yucky as I did earlier.

I just wish water could work like that on MG too!

Thanks for bringing up the hydration issue

Shari,

Go to www.iherb.com There you will find methylcobalamin sublingual tabs and they are cheaper than in the stores. I use Source Naturals. Some people really like the Jarrow brand.

Good, I'm glad your temp went up. I had diabetes insipidus (water, not sugar diabetes) and that's why I know about pulse/BP, temp and dehydration. Dehydration can make you feel like total crap too.

Annie

Thanks for the link Annie,
You were right about the prices, they are much cheaper. I went with the Jarrow Formula and placed my order to include several bottles so I should have enough to last me for quite some time. I read the reviews for that product while I was there and it looks like many people agree with you. This is only my second day of taking the 500mcg B-12 pill that I have here and I do feel a difference in my energy. I can only imagine how much better I will feel when I take the 1000mcg when it arrives. I've never taken something that dissolves under my tongue before so I hope it doesn't have a nasty taste to it.

Oh sweetie I am so sorry you feel like this. It just sucks!

MG can be so very lonely. That is why I love this site. It has helped more than any meds I have ever taken.

Know that you are in my thoughts and prayers.

Love,
Erin

Thanks Erin,
Today is one of those not so good days for me . Yesterday was much better and of course when you feel better, you get more hopeful that the next day will be the same. My son has his first tennis tournament game today so I am trying to muster up all the strength I can so I can go and support him.