Connie
I am speechless, I am so sorry you have MND, & have to travel for appts., I hope they can keep the stem cell research going, so important !

Connie - - I am so glad you found such a wonderful doctor! Sounds like he will be there for you whenever you may need him. Perhaps there is some relief in having a diagnosis, but I am sorry it is NMD.

Annie said it best - you are special and we're glad you are here. Pls keep us posted as you are able.

Sue

Hi guys.. I'm so touched by all of your kindness. Tears welled in my eyes as I read all of your messages. Thanks for allowing me to stay here even though I don't have MG! I've sure learnt soo much from all of you here, feel like giving you all a great big bear hug.

Thank you for all that you are. Thanks for being with me through the undiagnosed period, for keeping me sane, and letting me know that I'm not alone.

Words cannot express what I am feeling inside
There's so much to say, yet I don't know just how to express it to all of you.
So tried writing something short, just for all of you, to show how special you all are to me.

Though we're all far apart, the closeness is in our hearts
Internet friends they say, they won't be here to stay
But they can never imagine, how many times I've thought about you
How thankful I am, that you're all such good friends to me
We have once-in-a-lifetime friendship
the kind that isn't based just on fun
but acceptance and love instead
It is reassuring to know
that all one of us have to do is to post a note
and immediately without question, without reservation,
we will respond immediately
I never feel quite as "okay" or understood with anyone else as I do with all of you.

Thank you to all you wonderful people.

Rach: Yes! I look forward to walking not like a stick man anymore. Lol. I look forward to focusing on dealing with this monster, and also taking time off to do the tihngs I want to do.. am still hoping you'll get your diagnosis soon too, and start feeling better with the oxygen! And praying that you'll meet this superb doctor too. Hee.

Pat: I love you! Tho we've not met, like I always said, your sweetness shows through in your short messages. I can't bear to leave u too! It'll get better as long as I still have all of you.

Nicky: Thanks so much sweetie. Am really happy to have found you here too, thanks for always looking out for me. I love my new doc too! Loved it when he said my previous docs shamed the industry. Lol. Just that I still have this phobia for the neuro I'm seeing next tue.

Annie: You have such a special place here! You're always amazing, and I perk up whenever I see ur name as I know you'll have powerful info to add on and help. *hugs* you're so special to me!

Mary: Yes. I hope so too. That a cure can be found. Its devastating to see people literally wasting away with MND. And also for those scheming business people to stop using scams to cheat PALS money. Lol..

Sue: Thanks so much hon! Yes, i'm relieved, at least it isnt an invisible monster I'm dealing with. Now it has a name at least.

Lastly a great big hug to all of you! oh gosh. I just love today. I can tyoe so much!

Connie,

I'm so sorry about the mnd diagnosis, trying to express how I feel will just not sound right, so this will have to do.
I'm glad you've found a good doctor.
I'm soooo happy you are sticking round, cos the place wouldn't be the same without you.
take care, I'm thinking of you
Kate

Hey sweetheart! I am so sorry to hear about your dx..........

You have been such a source of inspiration for ALL of us - upbeat, sensitive, caring - we ALL love you so much!
There is always hope! Always!

Please feel free to contact me ANYTIME 24/7 - to vent, ANYTHING!

Love,

Erin

Thanks Erin and Kate!

You're all my inspiration!