Jessica
So glad you are getting relief, no one likes being on these drugs, but if they help your quality of life so be it !

How long does it normally take for you to feel better after starting prednisone? I have been on other treatment for MG but for some reason over the last couple of months it isn't working like it used to. I am thinking about going the prednisone route but am still unsure because I have had flare ups of MG in the past and it has always calmed down eventually without the use of Prednisone. This flare is lasting longer than usual so I am in a little pickle right now.

My neuro wants me to see a MG specialist at the end of the month for a second opinion on my treatment plan so I have until September 30th to decide if I want to try prednisone. I guess the hospital stay, the "getting worse before you get better" kinda frightens me a little bit as well as the possible side effects of prednisone.

I'm so confused.

Hey guys,

My hematologist said that my diabetes is borderline, and I should be able to manage it with diet...He told me to monitor it in the morning and a couple of hours after a meal...So far, it hasn't been too bad...Also, I think that my neuro. might reduce my prednisone because of this, so I'm kinda relieved....Taking prednisone is kinda too scary for me, I think...There are just too many new diseases/infections to possibly contend with...At least with the MG, there's just the one...The infections thing scares me a lot...I might search the internet too much, but I'm always finding these articles about people getting brain infections because of prednisone, and it's kinda too scary!

Nicky

Nicky,
That's good news about the diabetes! Was worried about you. Even if you can't lower the pred right now, at least you know you can impact the sugar levels adequately enough through diet for now.
Sue

Hey sweetie! Whatever you decide about pred, please do not stop taking it cold turkey. It is really dangerous!

How are you feeling today?

Love,
Erin