Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Reply
 
Thread Tools Display Modes
Old 09-18-2009, 08:34 AM #1
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

Hi,

My husband and I go on short road trips about every two months to visit reletives and friends. They take between 2 to 6 hours. We have to stop every hour for about 5 or 10 minutes so I can stretch and walk a little bit. It makes a big difference in how I feel when we get to where we're going. My husband does all the driving. I live 2 miles from the grocery stores and mall, and that's pretty much all the driving I can comfortably do. Good luck and sorry I couldn't be of more help. Take care.

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 09-18-2009, 09:57 AM #2
Maxwell'sMom's Avatar
Maxwell'sMom Maxwell'sMom is offline
Member
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Maxwell'sMom Maxwell'sMom is offline
Member
Maxwell'sMom's Avatar
 
Join Date: Oct 2006
Posts: 371
15 yr Member
Default

Hi, I travel terribly. Sometimes, I think the jiggling of the muscles all the while we're sitting there on the road is what does us in too.
I take Provigil, and it works way better than coffee!!!! I use to be able to drink an entire pot of coffee during a time I'm tired, and it wouldn't do anything to keep me awake. Provigil is a tremdous help! Can't stress that enough.

The last thing you'll want to take is something to relax you, if you think you're wiped out now, if you take something to relax you, it will take days to feel better again.

Traveling is awful for me. I drive an hour to see my doctors, and it take about two days of real resting to recoup the loss of energy. Yesterday, I had an hours drive for my infusion, and although, it's my husband who is driving, it wipes me out.
You're not alone.
Take a pillow, and blanket, and see if you can snooze a little while on the road, maybe it will help in not tensing the muscles.
best of wishes
love Lizzie
Maxwell'sMom is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Have Cat, Will Travel Twinkletoes Pets & Wildlife 11 07-28-2009 01:05 AM
What should I do - Flu and air travel daisyem Social Chat 6 05-04-2009 03:25 PM
Do you travel well? braingonebad The Stumble Inn 27 03-12-2009 05:59 PM
no more time travel for MJF indigogo Parkinson's Disease 0 06-01-2008 02:46 PM
Air Travel Chicory Parkinson's Disease 3 05-25-2008 04:52 AM


All times are GMT -5. The time now is 12:43 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.