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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Hi,
My husband and I go on short road trips about every two months to visit reletives and friends. They take between 2 to 6 hours. We have to stop every hour for about 5 or 10 minutes so I can stretch and walk a little bit. It makes a big difference in how I feel when we get to where we're going. My husband does all the driving. I live 2 miles from the grocery stores and mall, and that's pretty much all the driving I can comfortably do. Good luck and sorry I couldn't be of more help. Take care. ![]() Hugs, Pat |
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#2 | |||
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Member
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Hi, I travel terribly. Sometimes, I think the jiggling of the muscles all the while we're sitting there on the road is what does us in too.
I take Provigil, and it works way better than coffee!!!! I use to be able to drink an entire pot of coffee during a time I'm tired, and it wouldn't do anything to keep me awake. Provigil is a tremdous help! Can't stress that enough. The last thing you'll want to take is something to relax you, if you think you're wiped out now, if you take something to relax you, it will take days to feel better again. Traveling is awful for me. I drive an hour to see my doctors, and it take about two days of real resting to recoup the loss of energy. Yesterday, I had an hours drive for my infusion, and although, it's my husband who is driving, it wipes me out. You're not alone. Take a pillow, and blanket, and see if you can snooze a little while on the road, maybe it will help in not tensing the muscles. best of wishes love Lizzie |
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