NeuroTalk Support Groups - A few questions......

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - A few questions...... (https://www.neurotalk.org/myasthenia-gravis/103299-questions.html)

Hi sweetie! I should have remembered you were so allergic - open mouth, insert foot! LOL!

I agree about the side effect thing - everything we take seems to have WICKED ones.......even IVIG and the other......:(, however for ME it just seems to work!

How are YOU feeling today?

Love,
Erin:hug:

Quote:

Originally Posted by Joanmarie63 (Post 568247)

Erin,

The reason I am afraid to try IVIG is because I suffer bad reactions from anything I take. And well to be honest here, I am so tired of the side effects of things I would rather be weak from the MG only, at least than I know what the weakness is from and I can relax, but not knowing what a medication will do to me, well I just get to stressed out.

Hi Annie! Thank you so much for the advice! I swear you could/shouldl be a DR! Imagine that; a DOCTOR who actually UNDERSTANDS and cares about MG! :D

I've decided that until I KNOW how this is going to go, I will take it really easy - no point in overdoing it! It's just not worth it!

I am blessed to have a fabulous neuro who really listens to me and calls me back no matter how trivial I feel my questions are..........:D

How are YOU today? Are you feeling better?

Can't wait to hear from you!

Big hugs!
Erin:D

Quote:

Originally Posted by AnnieB3 (Post 568270)

When you've been on Pred for awhile and do that much of an increase, you can have signs of an adrenal crisis. Please be careful. Look for signs of sweating, feeling really out of it or really tired, blood pressure dropping, etc. I hope the decrease goes well. If not, you need to talk to your doc about going down more slowly.