| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
 |
|
Site Navigation
| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
|
Thread Tools | Display Modes |
|
|
| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
|
Thread Tools | Display Modes |
09-18-2009, 11:58 AM
|
#1 | |||
|
||||
|
Senior Member
|
Hello all! Went to see Dr. I on Wednesday - he thinks @ this point the amount of prednisone I'm on is hurting more than it is helping, so I'm going back to 40/20 alternate days versus 60/40......I will also be getting IV IG or the other every 3 weeks until I a weaned down to 20 mgs. of prednisone - YAY!
I won't lie. If I HADN'T had the IV IG before my last trip I don't know how I would have made it. For ME IV IG is great stuff!  Are any of you on the same type program? 5 days of IV IG or the other every 3 weeks? How do you FEEL? Also, I am making small gift bags for the other neuro patients.I was thinking about going to the Dollar store and buying some Sudoku and crosswords, as well as cards, dice, and coffee mugs with chocolate inside. I'm also making some small homemade pillows. Can you think of ANYTHING I can add? We all know how boring being @ the hospital can be and some of those people are all alone....it makes me so sad!  Any ideas? Any advice would be appreciated! Erin
__________________
Erin . |
|||
|
 Reply With Quote
|
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| More Questions | Myasthenia Gravis | |||
| Questions | Parkinson's Disease | |||
| Pre-Op Questions | Myasthenia Gravis | |||
| Some questions..... | Sleep Apnea & Sleep Disorders | |||
| Many questions... | Epilepsy | |||
A few questions......
Threaded Mode