| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
 |
|
Site Navigation
| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
|
Thread Tools | Display Modes |
|
|
| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
|
Thread Tools | Display Modes |
09-18-2009, 11:49 PM
|
#5 | |||
|
||||
|
Senior Member
|
Hi Joanmarie! They smile cuz' I bring them pizza! LOL! Actually I am just so grateful to the whole staff @ the Methodist
I love your ideas as well! They are great!  Do you mind my asking why you are afraid of IV IG? Have you has a bad experience? For ME it has truly been GREAT! I don't even have to premed b/4 - just drink lots of fluids and I feel 100% It even gives the appearance of a mini eye job! LOL! As for the pred., I am so happy to be going down! My entire body is swollen and it is starting to give me major anxiety......Don't get me wrong, I'm still VERY grateful for it, I just need a break for a while! 40/20 should do the trick. I may be a little weaker for a while, but I am blessed enough to not HAVE to work @ this point, so I can stay on the sofa all day if need be! How are you doing? THank you for the ideas! I really appreciate them! love, Erin  Quote:
__________________
Erin . |
|||
|
 Reply With Quote
|
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| More Questions | Myasthenia Gravis | |||
| Questions | Parkinson's Disease | |||
| Pre-Op Questions | Myasthenia Gravis | |||
| Some questions..... | Sleep Apnea & Sleep Disorders | |||
| Many questions... | Epilepsy | |||
Hi Joanmarie!
I like DesertFlowers idea. Mints or hard candies to suck on is always a good idea because that way if they have weak facial muscles they can just let the candy "melt" and the flavor last a long time.
Now when I did take Pred many years ago, I was on 60 everyday for a year and then weaned ogg it for a year, then remission 
Threaded Mode