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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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Erin, Have they checked your erythrocyte sedimentation rate? Because you are immunosuppressed, a CBC may not show an infection. What if you have an infection? Have you taken your temp? When I had Clostridium Difficile, I had that kind of deep bone ache.
Has anyone checked your bone density? You have a hematologist. Maybe it would be a good idea to see him now. Whatever is going on, it isn't normal to feel that way. Keep a lookout for any signs of infection. I hope you can figure it out and feel better soon! When in doubt, go in. Annie |
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