Erin, Have they checked your erythrocyte sedimentation rate? Because you are immunosuppressed, a CBC may not show an infection. What if you have an infection? Have you taken your temp? When I had Clostridium Difficile, I had that kind of deep bone ache.

Has anyone checked your bone density?

You have a hematologist. Maybe it would be a good idea to see him now.

Whatever is going on, it isn't normal to feel that way. Keep a lookout for any signs of infection.

I hope you can figure it out and feel better soon! When in doubt, go in.

Annie

Hello again! I've had EVERYTHING checked - they know SOMETHING is wrong, but don't know what I am dealing with....is there any type of test for fibro?

Bone density is great. Blood is wonky - but still with all of the vitamins I take it is good as well. I am scared b/c the pain just won;t go away. That's why I emailed my Dr. @ 3:00 AM to tell her what is going on........ LOL!

I'm going to see my GP on Monday and Dr. I on Wednesday........

How are YOU feeling?

Love,
Erin