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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hello all! Just wondering if ANYONE has a clue as to why IV IG is so great for some versus the exchange?
I feel (and look) really healthy after my IV IG where as after the exchange I just feel tired. My neuro always teases me and tells me I'm "addicted" to my IV IG - all I know is that I love the stuff! LOL! ![]() The only thing I DO know is that IV IG is pooled plasma versus actually having the antibodies removed from the body....... Any ideas? Also - which works best for you? ![]() Also, I recently had a port put in my chest - a big one (think 3rd boob) and was wondering if they access that for the IV IG or the plasma exchange? Last question; how many of you have fibro and MG? I may be jumping the gun on this but I am truly wondering if I have it! Is fibro autoimmune as well? This pain has gotten out of control. I have to get up on the days when I feel well, but after only a few miinutes my left side buttock hurts and I have a shooting pain down my leg that numbs my foot - now it has spread to my right - all the way to my ribs. I have tried stretching, massage, tylenol, pain pills, heat, ice, vitamins, you name it, to no avail. ![]() I checked it out the other night and it seems like I have all of the pressure points, but what are the odds? Seriously? Any advice would be appreeciated! Erin ![]()
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Erin . |
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