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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi,
just thought I would start by saying all responses will be gratefully recieved! As some of you know Im using an oxygen concentrator at home. I use it as soon as I feel breathless rather than wait for my oxygen levels to drop. I need to know Im not going mad, just looking for some reassurance. Today I was feeling pretty rotten hardly surprising. I was feeling a tiny bit breathless, had that awful fog and fatigue. Oxygen sats were 99% on air. I thought I will put my oxygen on and see how I go. An hour and a half later Im feeling so much better, mentally clearer, breathlessness has gone. I just need to know that Im not experiencing a placebo affect with the oxygen. That it is making me feel better because I need it. Sorry this probably seems really really daft! But you know how you start doubting yourself when you are on the diagnosis merry-go-round. Thanks Rach |
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