Im with Annie on this one, the mestinon needs to be started very gradually so that your body can get used to it,

Im so sorry that your MG is starting to flare up again, it seems so unfair.

Hang in there and you rant away!

Love
Rach

Hi Joanmarie,

how frustrating for you to be having to take mestinon!!!! I hope it works for you and doesn't give you too many side effects
take care
Kate

Joanmarie,
Sorry for the setback. Take care of yourself and keep a positive attitude. This will go a long way during your struggle! We are here for you, so rant all you want and we will be supportive!
Hugs,
Simon

Thank you everyone for your kind words I believe the reason it has come back is because last Oct I was sprayed with an ABC fire extinguiser and after breathing it into my lungs my body went crazy. As for the thymus returning that is possible as my thymus was spread throughout my chest and back then the Dr did say if he didn't get it all it could return. I have been in and out of the hospital alot since last Oct but I don't remember if they checked to see if thymus returned although I have had a chest cat-scan they were more interested in checking the lungs, I will have my Dr. look it over again. Once again, thank you for being here

Hey Joanmarie, so sorry to hear about this! I know it doesnt feel good to have to go back on Mestinon again, especially when you havent taken it in a while. I hope that it works for you this time round, and you'll feel better soon!