I've been getting IVIG for about 4 years now. Everything was going so wonderful in the past but for the last few months something has changed for some reason. I am now noticing that I get a burning sensation on the skin of both arms after the IVIG's and was wondering if anyone else has that happen to them?

I take benedryl and a small dose of steroid before each IVIG treatment so I am confused as to why my skin feels like it is burning. It doesn't happen right after the IVIG but usually 3 to 4 days after the infusion. I've been getting quite a bit of IVIG's over the last few months because for some reason my MG is acting very weird. I used to get one IVIG every 5-6 weeks but over the last four months I have been in getting multiple IVIGs in the hospital and at home. Could it be that my system is overwhelmed with them?

Anybody know what could be going on? These IVIG's used to work like magic for me and I am just so frustrated that things are going all crazy on me for some reason now

I am seeing a MG specialist on Wednesday and am so nervous. After 15 years of living with this disease I have been able to keep it under control, almost to the point of forgetting that I have it but now it's a different story. I am just wondering if I have something else going on.