Thanks Annie, Jujuan, Ally, Kate, everyone! Dad got discharged today!!!!

The turn of events happened quite quickly, somehow the Maxalon worked and dad's able to tolerate at least clear feeds now. But he has to be on morphine, maxalon infusion and lots of other meds the whole day. He vomitted again after returning home, guess its due to too much movement all at once. From discharge to home.. But I'm glad he's home.

The hospital recommended hospice home care, so the nurse will drop by at least once a week to check on things, replace his maxalon infusion bag, and prob just to ensure things are in check. Am grateful for this service and the fact that its provided free for us.

Annie: Thanks for all the advice. The palliative care doctors for my dad are really nice, and his own doc also gave us her own mobile to call at any time of the day. So far the meds are working, but still only clear feeds allowed for at least a mth. He also cant walk further than 20m due to his lung infection for at least a week.

Jujuan: Thanks for your analogy! I do believe in that as well, and yeah. Its quite a bit of struggle now with my health and everything, but thank God that constantly there's also blessings in my life, like getting to know this forum and all of u. =)

Ally: Yup. That neuro's sort of striked off my list. Lol. Don't intend to see him again, decided to go back to my original neuro and talk it out with him. If its really all in my mind, then i really dont understand how come it gets worse when I'm out enjoying myself. Lol.. My prayers sound similar to urs.. I just pray for strength and peace now.. For myself and my family. And also wisdom. And for them to know God, for He has been a great source of comfort to me, and I know how tough it must be for them to deal all these without knowing God. Everyone has their own struggles, and its not fair for me to say I have more on my plate than all of u. We're all good in some, and worse in some so I'd say thats why we're all here for one another! *hugs*

Kate and Simon: Thanks thanks thanks. I try and update cos I just dont want u all to worry about me. I wish u guys were all here and I could get big hugs from u all...

Last of all, yes, I really do think the prayers are working.. Lol...

Oh Connie,

thats just wonderful news, I'm all teared up with happiness for you and your family!!!!

Sending you a hug, can you feel it.
How are you doing??
take care
Kate

Whoohoo Connie!!!

That is great news. Also, I want you to know that I admire you taking care of your dad....You are "honoring" your dad....and that is the first commandment with a promise....It speaks highly of your character and integrity.


God bless
JJ

Hey Connie,

That's wonderful news! You take good care of yourself and we'll keep the good thoughts & prayers coming.

Big Hugs,
Pat

Connie - what fantastic news!! Keep us posted as you can.
Sue

Hi sweetie! What wondeful news! I am so happy that your dad is feeling better - now how are YOU? Are you OK?

YOU have been through a lot recently and I just wanted to make sure that you are dealing with all of this.......

I'm also a HUGE believer in prayer - He has been so merciful....

I will continue to pray for you and your family!

Love,
Erin

Hi Everyone,

sorry havent been able to update or log in, dads back in hospital. =/ He was readmitted 3 days later after. He was discharged on Monday, but on Wednesday, he had vomitted four times through the day. We wanted to bring him back to hospital but he refused. It was very painful, seeing him in great pain, curling up, moving here and there, but we couldn't do anything. He only relented and allowed us to bring him back in on Thursday morning, as he vomitted even mouthfuls of drinks he took.

so have been literally spending 12 hours in hospital everyday by his side, as he wants people by his side now. Even if he didn't, I can't bear leaving his side as I really don't know whats up next.

am mentally and physically tired out, vented out my frustrations to a friend on Fri night, just couldn't stop crying. It hurts me to see dad in pain, and it hurts me to know that psychologically, he wants to end it all.

Its been a roller coaster, the doctor did an endoscopy on Friday morning, and managed to put in a food tube, this time leading directly to his small intestines, hoping that he can tolerate food this time round. We tried feeding him late afternoon the same day through the tube, and all was well except that dad kept complaining he's very full, even though we had only fed him 50ml of ensure. The nurses attributed it to the fact that its the first time he's having it through the tube so we didnt think too much of it.

The next day, on Sat, at 5pm just before we fed him, we tried aspiration. This time, we pulled out 450mls of black liquid, which shocked all of us. The doctor was called in, and the look on dad's face when he saw all that was pulled out broke my heart. There was blood in the liquid, which caused the black color, which also meant that its stale blood.

So feeding was stopped again, and we just kept drawing out liquids for the next few sessions (3hrs in between each).

Docs aren't sure what caused the internal bleeding, but since today, dad has resumed feeding, to try it out again. We're hoping that the bleeding was caused by the tube insertion and has cleared up. If this time round it doesnt work, it means dad will have to be put on drips and not have any food even through the tube.

Social worker came and tried to talk to mum and dad about the idea of hospice care, and this time round, dad was amazingly quite open to it. We visited two of the hospices, and chose one for dad. However we do not plan on admitting him just yet, want him home after his discharge this time round, unless the food tube fails.

Most importantly, all I want for him now is for the pain to be lessened, for him to be saved, and to know that Jesus loves him.

thank you everyone for all your prayers, I'm sure they're working somehow. And thanks for all your support and concern, I'm still sane!! Lol. Just need to let it out somehow I guess. Am seeing my neuro tomorrow, he's gonna try some treatments on me, discussing with him tmr. He disagrees with what the other neuro said about it being psychological, so he's a godsend. I nearly had a fall just now again, while getting into the car. Legs just gave way. Luckily mum held on to me. Weird how they give way. Two nights ago, the tendon or nerve near the butt cramped while I was walking and it was so awkward. Lol. Limped to the pavement in the hospital carpark, sat down and tried to stretch it. Took quite a while.

Anyhow, I'm really sorry I cant catch up with all the news here, am soo tired. Lol. Hands cramping up, needa go sleep soon. *hugs everyone* miss all of ya. Thank u so much!!

Hi Connie,

thanks for the long post catching us up on your news!!!
Sorry to hear your Dad isn't well again, it must be so hard to see him going through this especially since you aren't travelling to well at the moment.
Hope your neuro visit goes well,
take care, am thinking of you
Kate

Connie -

Thanks for the update. From your post, it is obvious that you are getting exhausted. BE CAREFUL! No one needs you in the hospital!!!

I'm glad your Dad is more receptive to hospice care. They are very good at pain management and really helped my Mom a lot.

Thoughts and prayers are with you.

Sue

Hey Connie,

Thanks for letting us know how things are going with your dad! I hope that it was the tube that had caused the bleeding and that his feeding can be continued without any problems.

I'm glad that he is feeling better about getting paliative care...The less pain he is in, the better he will feel.

I'm sorry about your fall! I agree that it does sound like you are tired understandibly...Try to get as much rest as possible, even though it's hard with all of the things going on!

Take care