Hey Connie, Thanks for taking the time to let us know what's going on. Sorry to hear about your Dad, but glad he's open to getting hospice care. The less pain he's in the better. They are so good at their jobs. Maybe you could just take a day off, go home and get a full nights sleep. Eat a good breakfast in the morning and then go to see you Dad. He would want you to take good care of yourself. Keeping the prayers coming. Take care!;)

Big Hugs,
Pat

Connie, I am very sorry about your Dad. I'm glad you have found some comfort and I hope he does too. My Dad's been gone for 13 years now and I can hardly believe it. He went through some rough times like your Dad too. You'll both be in my thoughts.

Annie

Hey
 

Hi everyone, thanks Kate, Sue, Nicky, Pat, Annie and all others who have kept up with this thread. Thanks for listening to all this, thanks for being such a great source of comfort.

Dad's still in hospital at the moment, and we've been doing our best to b there from morn to night. I love to see the smile on his face when he sees us. I love to hear him asking for me. I love to see him holding my hand too. Took a pic of that. =) Shall post it up later...

Dads now soundly asleep beside me, we're getting him discharged on Monday, and the home care hospice nursse will drop by on tuesday, just to make sure things are alright. We're planning still to keep him at home, as long as we can. The palliative care doctor explained that its gonna b v tough, emotionally as we'll feel helpless and cant do anything except to watch him basically wither away.

But I know, that I'll find enough strength through Him to get through all these. I'll prob just need to vent a little every now and then, but I think we'll get through it alright. =)

Thanks for keeping the prayers coming!!

Hi Connie,

Glad to hear your Dad's smiling when he sees you all, and that he's going home.

Will be thinking of you all, and vent away as much as you like, I'm sure everyone will agree we are here to hear you,
take care
Kate

Connie,

Your Dad is so very blessed to have such a wonderful, caring, and loving family. Being with him is the most amazing gift you could give...and his smile tells you very much he appreciates it and loves you.

Thoughts and prayers will continue to be with you. But do vent - and vent often. This is an extremely stessful time - and you must release that stress to stay strong for your Dad.

We're here to listen.
Sue

Connie
 

Just to let you know I have been following your thread and that Im thinking of you and your family.

Im so glad that it makes your dad smile when you go to see him.

I hope all goes well with his move back home and that you have good hospice nurses. The hospice nurses are great and are usually have much better knowledge and understanding due to their experience of dealing with patients like your dad.

Love to you and your family

Rach xx

Connie,
So sorry to hear about your dad, I have been out of touch for awhile. I am going through the same thing as you right now, my motor nerves are being damaged, with a second disease. My myasthenia screams on my emg & ncv, so they know I have both, just waiting for my new doctor to put things together.

Hey Connie,

I've not been feeling well and not posting much, but I want you to know I've been keeping you all in my thoughts & prayers. I hope your Dad does well at home. The love you all have for one another makes all the difference in the world. Take good care kiddo and vent all you want. We are always here for you.;)

Big Hugs,
Pat

Hi Everyone! Thanks for all the notes and messages.

I'm sorry to let everyone know that we had to send dad in 3 hours after he got home, by ambulance. His pulse rate suddenly shot up and he was shivering badly all over. He was already on oxygen, 3-4 but yet he felt extremHi Everyone! Thanks for all the notes and messages.

I'm sorry to let everyone know that we had to send dad in 3 hours after he got home, by ambulance. His pulse rate suddenly shot up and he was shivering badly all over. He was already on oxygen, 3-4 but yet he felt extremly breathless. He said he felt cold and his fingernails were turning blue. He was also extremely breathless though he was on oxygen. We thought it could be fever but his temperature was ok. I got so scared I called the ambulance only to be told it'll take 45 mins to reach my house. -.- Those 45 mins were the worst minutes ever.

Luckily dad did ok until the ambulance arrived, but when the paramedics took his pulse rate and oxygen level it was 141 and 89. His BP was extremely low, think is something like 60/90.

He was rushed to hospital, and when he reached hospital, his temperature suddenly shot up to 38.5 degrees (Norm's 37 degrees). After hours of wating at the ER, we were told he had a lung infection. So had to be warded again.

Dad was frustrated, and emotionally affected cos he didnt even get to spend one day at home and had to be readmitted. =/

So now its hospital day after day again. Do hope his infection clears, but doctor recommends hospice after this round. But we still hope to take him home...

Hi Connie
 

So sorry to hear that your dads attempt at going home was thwarted by the chest infection. I really hope that he catches a break soon.

I hope you are managing to get some rest in between visits.

Love to you and your family,

Rach