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-   -   Updates on me and notes for all of ya (https://www.neurotalk.org/myasthenia-gravis/104630-updates-notes-ya.html)

redtail 11-06-2009 04:49 AM

Hi Connie,

Sorry to hear your Dads return home was so short lived.

Thinking of you, you are all in my thoughts.
Sending you a big hug, and some strength!!!
Take care of yourself
Kate

ConnieS 11-08-2009 01:54 AM

Thanks!
 
Thanks Rach and KAte! Thanks for your prayers. Dad's still in hospital at the moment, and he's becoming more emotionally attached, and wants us here in the morning as early as possible. So everyday we basically spend more than 12 hrs in the hospital. Its ok, but sometimes its like fighting a war. Lol. Early today dad's tube got clogged somehow and wouldn't flush. We had to wait hours in anticipation while the nurses tried coke and water etc. Finally we won the battle and was able to let water pass through the tube. Phew. Else dad would have to go in for the procedure to reinsert the tube and I dare not imagine how he would have to go through the painful procedure again.

HEre are the pics I promised, of dad and me holding his hand.. =D

http://i607.photobucket.com/albums/t...y/DSC00457.jpg
Dad holding his icepack tightly, during the previous hospitalization when he was much better.
Since then, he requires oxygen 24 hours a day.

http://i607.photobucket.com/albums/t...y/DSC00466.jpg
Me holding dad's hand to sleep...

bluesky 11-08-2009 05:06 AM

Connie,

Those are really beautiful pictures.

We never left my late husband's side either - for about year, literally, because it was touch and go for such a long time. You won't regret a moment that you spend with your dad - of course. I remember when Mark, my husband, went into hospice there were always at least three of us, often many more. They let us sleep on cots and reclining chairs. At one point I just crawled into the bed with him so we could hold each other and one of the nurses came and laid a quilt over us. That was one of the nicest things anyone has ever done for me. There were so many rooms of patients without any visitors at all, just people so sick, all by themselves. It made me think what a strange culture we had. So sad. I'm glad your father has you, I can tell by the picture how much you mean to him.

Ally

ras1256 11-08-2009 09:31 AM

HI Connie,
I've been following your thread, though I haven't been able to post much. I can't think of anything to say except that you are in my thoughts soooo much. I love the picture of you holding your dad's hand. Those moments become more precious as time goes on. I was with my father when he passed and wouldn't trade that time for anything. To see the peace come over him gave me such absolute comfort.

You are a wonderful, wonderful young woman. Anyone would be proud and grateful to have you for a daughter, as I'm sure your father is.

Peace to you, Connie.

Pat 110 11-09-2009 06:30 PM

Hey Connie,

Sorry to hear your Dad's not doing well. It sounds like he is in good hands. I hope you are taking good care of yourself.;)

Big Hugs,
Pat

Nicknerd 11-10-2009 12:23 AM

Connie,

I'm glad that you are spending this time with your dad, and I love the adorable teddy bear in his first picture. The picture of the two of you holding hands really touched my heart- it's a beautiful picture.

You have a wonderful heart, Connie. I was reading the thread about the man in BC who you were trying to help get the correct diagnosis. You are a real asset to everyone you come in contact with, and your dad, no doubt, is blessed to have you as a daughter!:hug:

You guys are in my prayers.

ConnieS 11-15-2009 03:30 AM

Dad's passing on
 
Thanks Everyone, for all your support and prayers for my family this past month..

I'm sorry to update that my dad passed away on 10th November at 7.55am. I'm glad to say though, that he passed on peacefully and with us by his side.

Its been such a busy week, with his funeral and everything else that has happened. Looking back, I'm really thankful that I had spent time with him at the hospital these past 1-2mths.

Really thank everyone for their love during this period of time.. You're all angels. =)

Ally: Yup.. He really meant a lot to me, I guess we meant a lot to him too. He made it so short for us that i think part of me still cant believe he's gone. I'll never regret a moment spent with him, but greedy me just wished I had more.. I can't imagine what people are thinking when they do not visit..

Ras: Thanks so much for your kind words.. I wished we had more pictures of him, but I'm thankful I got to be by his side towards the last 1-2 months of his life. I know that he's now looking down at us from heaven up there. Miss him soo much too..

Pat: Thanks dearie, for ur msg. He was in very good hands, and what his team of doctors and nurses did touched us tremendously.. I'm thankful for them..

Nicky: Lol.. Thats mine. I insisted he had something to hug at night. =) Thank you for your kind words.. I am thankful I got to take that picture. Its something to rem for a lifetime.

rach73 11-15-2009 03:49 AM

Hi Connie
 
I am so sorry to learn that your dad has passed away.

Just to let you know that I am thinking of you.

Love
Rach x

redtail 11-15-2009 03:50 AM

((((Connie)))))
So sorry to hear about your Dad, but I'm glad you were all able to be with him at the end.

How are you doing at the moment????
Iam thinking of you and all your family.
Take care of yourself,
Kate

Pat 110 11-15-2009 08:45 AM

Connie,

I am so sorry you lost your Dad. It must be such a comfort to you to know you were with him and he was not alone. Please take care of yourself.

Big Hugs,
Pat


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