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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hi all,
I just got out of the hospital last night. I had breathing problems again and had to go in for IVIG. In mid September I got a sore throat/cough that lasted about four days. At the end of it I started to have shortness of breath. Well the sore throat went away but the shortness of breath stayed and just got progressively worse. I had my thymectomy in Feb. and I was doing fairly well since then. I had the weakness in my limbs. But I had not had to deal with the droopy eyelids, breathing/swallowing problems since before the surgery. Well everything is back. I hope it is shortlived because I sure love my up times. We really don't realize how good we are doing until we get to the other end of the spectrum. I am so thankful to be home and have my kiddies hugging me again I missed them so much! I am trying to get prepared for thanksgiving this weekend. My husband said that we are just going to get KFC and save all the trouble. I hope he understands that it won't be much trouble for him at all and I will guide him through all the preparation from the couch! Take care all! I am thinking of all of you and hope everyone is strong! Melanie |
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