FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
Thread Tools | Display Modes |
![]() |
#1 | ||
|
|||
Junior Member
|
I just wanted to check in and let you all know I haven't disappeared again - just feeling really weak and not able to type much. I'm still reading the posts each day to keep up.
I don't know what's going on with me. My chest feels like an elephant is sitting on it and I can't breathe at all if I get up and hardly breathe even sitting. I have to prop up in the bed. My neck is also extremely weak and I have some kind of weird eye pain going on. I did sit outside and sprayed myself with Off mosquito repellant yesterday but that wouldn't effect MG would it? If I don't get better tonight, I'm going to have go in tomorrow morning and have my IVIG. I was trying to hold out and space them 2 weeks apart instead of once every week, but I don't know. I get so confused and paranoid about taking too much Mestinon. I think, ok, maybe I'm taking too much (60mg every 3 hours). It's been 4 hours since my last one - thought I would see if it helps to not take it, but I feel even worse now. The whole breathing thing is so scary. Sorry for the long post - guess I'm a little worried.
__________________
. Sharman |
||
![]() |
![]() |
|
|
![]() |
||||
Thread | Forum | |||
Feeling guilty. How would you cope with this terrible feeling !? | Survivors of Suicide |