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Old 10-14-2009, 04:06 PM #1
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Hi Inquisit,

I'm sorry that your kids are sick, and that you're going through such a hard time right now. I hope they get better quickly!

As far as the slurred speech is concerned, that's my main symptom, along with nasal speech. The causes (weak tongue and palate) have also made it really difficult for me to eat at times. I have also lost my gag reflex, and facial expressions during extreme weakness. Don't worry. It's not unusual at all to have these symptoms with MG. Some people have pure bulbar MG with no ocular weakness (I'm one of them).

I hope that things get sorted out soon, and that your weakness is alleviated.

When the neurologist did my single fibre EMG, they did it on my forehead, and were able to get 'jitter.' If your symptoms are mainly bulbar (and if you have a bit of facial weakness too), this might be a good place to do it.

Take care!
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Old 10-14-2009, 09:27 PM #2
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Hi Pat,
I have experienced some speech problems but very mild. Usually I will try to say a word and it comes out.....well all messed up. I will attempt it several times and finally get it right. I've noticed this happening at least once or twice a week.

Take Care
JJ
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Old 10-15-2009, 12:21 AM #3
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Ugh. You're living one of my fears. I have two children too, no family in town (although someone who could drive in from another state - thank you sister in law ) and I'm a widow. I really worry about my kids getting the swine flu and trying to care for them. And then me getting the swine flu! What worries me about you is that you have breathing problems too. That's a scary combination with swine flu.

Can you get a new neuro? I know they're hard to get in to see, but it sounds like yours is especially tough.

I have trouble speaking sometimes too. It's not one of my big symptoms but there have been times when my tongue just won't do what I tell it to do. That's especially true when I'm very stressed out.

If you even start to get the flu, I think you should start leaving messages like crazy. Let your primary know too.

Ally
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