Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 10-25-2009, 03:13 PM #8
jana's Avatar
jana jana is offline
Member
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
jana jana is offline
Member
jana's Avatar
 
Join Date: Apr 2009
Location: Tenn
Posts: 554
15 yr Member
Default

Stephanie, how do you sit or lay down? When I am having difficulty breathing (I am a mostly Bulbar MGer who is also asthmatic), I breathe easier when I lay on my left side -- I also tend to sit angled this way in my recliner when I am in exacerbation. Sometimes, I even lean FORWARD (in a sitting position) to catch my breath. Laying on your back makes it VERY difficult for your lungs to work (in an MG body) -- you are pushing AGAINST gravity.

I tend to have the chest pains when I am in exacerbation -- I've had ekgs and worn a Holter monitor -- all came back "normal". If all else checks out (DO get this checked out completely!!!), you may learn that this is just part of the "MG package" -- especially during an exacerbation or time of stress. You DO sound stressed right now -- WITH good reason.

Take care!!
jana is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
FDA: Botulinum Toxins Linked to Respiratory Failure and Death Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 0 02-12-2008 08:34 PM


All times are GMT -5. The time now is 03:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.