MG is mainly about muscle weakness that is variable. If it would help to have the EMG redone to reassure you, then maybe you should do it (by an expert). Or you could see a neuro-ophthalmologist to have them objectively show you if you have double vision and why. It's easy to freak yourself out when you feel so bad and start thinking because you have ALS. An MG expert would more than likely know the difference between the two.

Maybe if you sought out the opinion of an MG expert, you would not only feel better but have more information you may need about the course of the disease, treatments, etc.

MG is an autoimmune disease. Mestinon only helps with symptoms; it does not suppress the immune system that is reducing your acetylcholine and making your muscles weak. Some studies do suggest it does help with the immune system but not enough have been done. The increase in symptoms may only mean that you need another treatment, as Deb said.

Please call your neurologist's office and make an appt. to discuss all this. It's hard enough dealing with a new diagnosis let alone worrying about it being ALS instead or progressing.

Annie

Here are two websites so that you can read up on MG:

www.myasthenia.org
www.mdausa.org

To answer your question about the med-alert bracelet, I actually have a paper I carry on me with all my conditions and medication allergies {because it won't fit on a bracelet} It even has a note on what MG is because most EMS workers don't know what it is, my husband called 911 on me a few months back and the EMT actually thought it was a "panic attack" boy did I set him straight once I was able to.

So I have a bracelet that says I have MG and check purse for purple folder for all health info.

Thank you all for your info, I have made apps with 2 seperate neuros, 1 who has treated more MG patients then my current neuro and 1 who only treats MG and ALS patients (well he's got my records and hasn't got back to me as to whether he will take on my case, I guess he's reaslly choosy - but also really good, I'll keep my fingers crossed and pray)

Thanks again!

Just wanted to say hello and Welcome to the BEST SITE on the net for MG!

Your symptoms do sound like MG - at least as far as I am concerned! I am still a relative "newbie" to MG - only being a year and half into it......hate this darn disease, but it CAN be controlled and life long remission is possible!

I am very curious about what you said about the 'roids....how do they make you feel? I love them, but I am the exception to the rule in that respect! LOL!

You do not have to put on a happy face when you are upset or scared! THat is what WE are here for! Come here and vent all you want! We do know what you are going through......

When you are tired, rest. It is just that simple. When you want to cry, cry. MG is a very scary and LONELY disease b/c we (for the most part) LOOK OK, so people tend to think we are being lazy - I have learned the hard way not to push it - just not worth it for me!

Again, hello and welcome! We are here for YOU!

Erin