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Old 10-21-2009, 03:54 PM #3
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erinhermes erinhermes is offline
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Join Date: Jul 2008
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erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Heart Hi Mel!
Hi honey!

I am so sorry to hear you aren't feeling all that hot right now.....as for your question.....it's a vicious cycle: we have to have certain meds to suppress our system then we are left rather "defenseless"......

If we didn't have super strong, pain in the butt immune systems then we wouldn't need the meds - can you say Catch-22?

I don't know much about MG, but it does sound like you need a "boost" right now - esp with it being cold/flu season.....what does your dr say?

THis time of year scares the bejeebies out of me - I am so afraid to catch anything that I have been housebound for a while - not such a great option.

Hopefully Annie, Brennan, Maurice, Becky or one of the super smart people on this board will be able to fully answer your question.

I do know this - be extra, super cautious right now; wash your hands all the time, keep a humidifier going (I saw that humidity can kill certain viruses), keep that lysol and hand sanitizer handy - just in case!

Love,
Erin















Quote:
Originally Posted by rezmommy View Post
I am still learning about this disease and everything that goes along with it. I want to know, DO I HAVE AN IMMUNE SYSTEM?

I was diagnosed with generalized MG in Nov. 08. I was started on Imuran 100 mg at that time. In Jan. 09 I had my first crisis and was started on prednisone. Since then I have had a second crisis and my dose has gone up and down. Right now I am at 45mg of pred a day.

I had a thymectomy in Feb. 09. I have had a couple of IVIG treatments.

In Sept. I got a sore throat/ cough that brought back the shortness of breath that I had not experienced since before the surgery. The breathing got worse so I went into the hospital for IVIG and am SLOWLY improving.

I am fearful of getting sick because if a sore throat can take me down, imagine what a flu could do.

With the thymectomy and the imuran and prednisone do I have anything left to fight off illness?

Thanks for listening. ~ Melanie
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