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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-24-2009, 06:19 PM
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Senior Member
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Hello all...Just wanted to VENT and tell everyone how much I HATE this flipping disease!
 I am so sick and tired of feeling like this! I hate sleeping all the time and needing constant IV IG - though I do love the stuff! I hate having scars all over my body and feeling like sh&t all of the time! I hate having hair all over me and being 50 lbs overweight! I hate being in constant pain with NO answers as to WHY I'm hurting like this! The pain is just making me plain mean! I think the only break I've really had from it was in the hospital when I was given 2 pain pills and some morphine.......I was able to MOVE without hurting....it was incredible!  I've even tried that Fentanyl (sp?) pain patch without any relief........I've had MRI after MRI. Catscan after catscan. There is no reason to hurt like this, but I do!I DID see a guy here in town that dx'ed me with severe nerve damage, but my neuro strongly disagreed.....I just don't know which way is up right now! Sorry for venting! Erin
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Erin . |
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Sick and tired of being sick and tired.......MG sux!
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