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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hello all...Just wanted to VENT and tell everyone how much I HATE this flipping disease!
![]() I am so sick and tired of feeling like this! I hate sleeping all the time and needing constant IV IG - though I do love the stuff! I hate having scars all over my body and feeling like sh&t all of the time! ![]() I hate having hair all over me and being 50 lbs overweight! ![]() I hate being in constant pain with NO answers as to WHY I'm hurting like this! ![]() The pain is just making me plain mean! I think the only break I've really had from it was in the hospital when I was given 2 pain pills and some morphine.......I was able to MOVE without hurting....it was incredible! ![]() I DID see a guy here in town that dx'ed me with severe nerve damage, but my neuro strongly disagreed.....I just don't know which way is up right now! Sorry for venting! Erin ![]()
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Erin . |
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