Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 11-11-2009, 12:28 AM #1
EllenW EllenW is offline
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Join Date: Nov 2009
Posts: 17
10 yr Member
EllenW EllenW is offline
Junior Member
 
Join Date: Nov 2009
Posts: 17
10 yr Member
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Hi everyone. So happy to have found all of you. I was diagnosed with MG in September, finally. Struggling for years with what the Docs called something in the Lupus family and Fibro. Now I know I have MG, Lupus and Fibro. Nice combo! I take Mestinon Timspan in the morning along with 30 mgs of regular Mestinon. More 30 mgs later in the day adn before I go to sleep. I also take Cellcept to supress my immune system. Bad GI problems. Many days I don't want to leave the house. But I'm still much better with Mestinon than without. My body tells me when it's time to take my pill. Great idea for a thread. Nic eto know how everyone else is feeling.
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