Nicky,
That is amazing that she gave you 2 time release to get you by until tomorrow!
I am affraid the Pred may be the root of my recent problems too. I have the shakiness, heart palps, sweating and trembling, plus it is making me sooo irritable and anxious. I feel the same way about one symptom going away and another one starting. It is impossible to know how you will feel from one day to the next. There is a definite greiving process with any disease and it is perfectly normal to want back the life we had before. I struggle with that alot too as well as the "bargaining" I hate to even admit this but when I first got sick I was convinced I had lung cancer and prayed to God that if it wasn't I would quit smoking. Well it wasn't and I feel guilty for not holding up my end of the deal. I have cut way back but am not smoke free yet. I keep thinking there is no way I am going to get better until I make good on the promise I made Him.
You are NOT being depressing, just honest. We are all part of this group so we can support others when they are having a hard time. It is very hard to stay positive when you don't feel good. Try to get some rest and relaxation and hopefully you will start feeling better again soon!!!
Kendra
!!!
Quote:
Originally Posted by Nicknerd
Thanks, Kendra...
I know! the pharmacist is so nice...She gave me two mestinon time-release to tide me over until tomorrow...Thank God..I'm able to move my tongue a bit now, and my face isn't so weak...
i know what you mean about the medicines...For me, the prednisone causes a lot of strange side-effects...When I was @ 80mgs, I got horrid palpitations, sweats, shakiness...My blood-sugar was really high when this would happen...Now that I'm back at 60mgs, my blood sugar isn't so bad, but I notice that my MG symptoms have gotten worse...
It does suck to have this, no matter what age you are...Sometimes, my energy levels are up and I feel like going out, or going back to work, I feel so bored staying at home all the time... but then I remember that i can't talk...I feel trapped by this...I wish there was a magic wand that would take this away. Sometimes, one thing goes away, and another things surfaces...Sometimes, I really miss my old life, and I don't want to lay it to rest...I just want it back for like 3-months, and then I'll take the symptoms back again...I've been bargaining a lot lately with someone, maybe God...But I find that it's better to forget how things used to be, because it's too sad.
Sorry I'm being so depressing 
Edit: Hey guys, I just wanted to say sorry for being so depressing...i've been feeling pretty sick the last few days, and have been in a bad mood...I think that my MG is pretty abnormal, so for the newbies, don't worry, you will get better! Mine is just really resistant, but most people get well from the regular meds...Don't let my experience reflect how yours might be!
*hugs*
nicky |
11-02-2009, 06:35 PM
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