[redtail]

Hi Patrick,

sorry you are having a bad time at the moment.
I was refered to a continence nurse early on in my diagnosis. I had bad problems with incontinence. Luckily I very rarely have problems now nearly 7 years on, but if I get sick or very tired I tend to stay close to home, just in case, I tend to know my body now and how far I can push it. Hope you get some help with the people you've been refered to, I know I did.
take care
Kate

[Pat 110]

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

[PMCPMC]

Originally Posted by Pat 110

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

no help on myasthenia gravis ,left it for consultant but will contact him for an earlier appointment than 7th december.
Picked up on my list of dark thoughts of sucide entering my head daily with all that has happened these last few years.
Referal made to appropriate specialist team.

[PMCPMC]

Originally Posted by Pat 110

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

prescribed CITALOPRAM an antideprssant but of course saturday when I took the first ,it interrred with current medication as it acted on my neck as a muscle relaxant .Rang out of hours doctor ,ni help there.
will contact gp today again

[Pat 110]

Hey Patrick,

I hope your GP can prescribe something that will work for you. I hope too that you get an earlier appt. with your consultant so you can get your MG symptoms under control. Just remember it will get better so hang in there.

Hugs,
Pat

[PMCPMC]

Originally Posted by Pat 110

Hey Patrick,

I hope your GP can prescribe something that will work for you. I hope too that you get an earlier appt. with your consultant so you can get your MG symptoms under control. Just remember it will get better so hang in there.

Hugs,
Pat

gp is a joke and a lazy man .
Managed to get to see neuro yesterday.
Guess what I sensed the population of N Ireland has not allowed them to see any cases with my extreme conditions.
However he was able to confirm pred has not kicked in and has approved a level I found worked at 120mg every 3 hours.
No weakness anywhere but a little muscle flutter and eye flutter .Can put up with that for the moment.
Might make an interesting poll how large a population does your neuro see to allow him to be an expert in your condition.
Perhaps that is why in the Us there is such a wide variation in the time of diagnosis .

[PMCPMC]

suspected might be chest infection.
Got worse during the night so left at 04:00am to return once again to A&E .
More blood tests ecg etc
Guess what now I have a chest infection which needed augmentin 625 three times a dayto clear up.
oh well!!!!!!!What can you do ?
http://www.medscape.com/druginfo/dru...%2D600%20Oral& no interaction with mestinon and prednisone it says

Watch this space!!!!!!!!

[redtail]

Hi Patrick,

sorry to hear you have a chest infection. Hope it gets under controll with the augmentin asap!!!
take care of yourself
Kate

[sugrkiss]

I had a bad problem with mucus in my chest and throat during the beginning of my Mestinon treatment....I am also on a high dose (was at 120 4x a day, now I'm at 1 3/4 pill about 105 mg)...hopefully you start feeling better soon, but I just wanted to let you know about the mucus issue...Mine got better after a few weeks with the meds...

[Pat 110]

Hey Patrick,

Sorry to hear about your chest infection and hope you start feeling better soon. Take care.

Hugs,
Pat