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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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SELF INDULGENT BUT HOPE IT HELPS OTHERS
I have just recently been diagnosed after presenting at A and E with heavy pressure on my chest like I was going to have a heart attack Ecg was fine but o2 levels were low Several weeks previous a girl who sits opposite me in the civil service in a call centre commented "do you you know by the end of the day your right eye is nearly closed each day.I thought you were having a stroke." I checked it on the internet as ptosis of the eye a sign of of possible myasthenia gravis. I had to go any way as an annual check to my opticions who immediately noticed the ptosis as I entered the room. She gave me a letter for the gp The Gp would have on the following tuesday following my entry to hospital on the friday night diagnosed mg from the blood tests. The neuro saw me over the weekend and started me low dose prednisolone building to mgs a day by the time I left hospital after two weeks. I have bone and stomach protection medicine to take with it . With this I also was was started on mestinon 60mg every 8 hrs . Before I left hospital I was doing some walking in the main hospital corridor and found the same heavness again. Just last night I was late with the mestinon and the chest preesure returned and my throat felt as if it was closing until the mestinon kicked in after twenty minutes and cleared it completely after an hour . I guess my diaphram is my weak muscle in this case |
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