[PMCPMC]

Patrick here,top of the morning to you,
I have been recently been diagnosed with MG.
I had found over the last six months I had had bladder problems made worse when I started taking mestinon every three hours for breathing difficulties.
I would rather breathe ,as I am now the best for thirty years and put up with the inconvience of bladder weakness.
I have while I am waiting on a uroligist taken to wearing a very smart slimline men's incontinenance throwaway underwear.
No more washing for my wife of underwear.
When the bladder overspills when full,no wet trousers .
I is certainly different but the concerns tend ot beall in your mind as noone knows what you are wearing and you are protected.
It has also led to sexual dysfuntion at the moment ,a little embarrasssing.
Thank god it is the internet I am saying this on.
I am afraid poor Penis has all but disappeared inside and hence when using the bathroom I sit down now like a women.
It is embarrassing for us men but better to breathe and live

[PMCPMC]

give him computer generated list of problems as follows:-

1. Medication updated on computer prescriptions for blister packs. cannot remember all meds making mistakes
2. Examination 12:00 pm last tablet of mestinon here is my current position .please exam.
3. heavy pressure on my diaphragm
4. neck muscles under pressure to keep head up
5. lower limbs no flexibility
6. fingers cannot write more than a few lines
7. cannot lift arms above my head
8. When bladder is full it releases no control.
9. presciption for throwaway pants.
10. Need assessment for care as I can do nothing for myself.
11. Need confirmation of condition for housing executive to apply for sheltered dwelling. We are probably going to loose our house to reprocessions.
12. Dark thoughts of suicide have entered my mind.
13. heart at times racing

picked up on no 12 and prescribed citalopram and referred me to mental health team for assessment .
refeered to incontinence team and for assessment by social services team as currently i can do nothing for myself .
They will llok at home help and medication supply.
Will wash and dress you.

[Nicknerd]

PMCPMC,

I'm sorry that you're having a tough time. Please let us know when you're feeling depressed- we're here to support you! Don't let this illness get you, you will have more control over it eventually!

By the way, you mentioned something that stood out to me. You said that your lower limbs have no flexibilty. Do you mean that you have reduced reflexes? You also talk about lack of control of your bladder and sexual problems. Has the doctor ever mentioned something called Lambert Eaton Myasthenic syndrome? Were you having problems with your bladder before starting mestinon? Myasthenia gravis does not cause problems with the bladder or sexual dysfunction, but Lambert Eaton Myasthenic syndrome causes those types of problems as well as muscle weakness that mainly occurs in the legs and arms. It can seldom cause ocular weakness, but usually starts at the legs. It can also causes the reflexes to be non-responsive.

Sorry to throw this your way. I'm sure that you have the correct diagnosis, but some of your symptoms are sorta worrisome in that they seem to point to that illness. I've never heard of Mestinon causing sexual dysfunction.

EDIT: I found someone else who experienced the same problem as you re. sexual dysfunction and mestinon. Just ignore my post about that other disease...Sorry if I confused/worried you!

Here is the link if you are interested: http://neurotalk.psychcentral.com/thread91129.html

Anyway, you can talk to us anytime you're feeling blue.

[redtail]

Hi Patrick,

sorry you are having a bad time at the moment.
I was refered to a continence nurse early on in my diagnosis. I had bad problems with incontinence. Luckily I very rarely have problems now nearly 7 years on, but if I get sick or very tired I tend to stay close to home, just in case, I tend to know my body now and how far I can push it. Hope you get some help with the people you've been refered to, I know I did.
take care
Kate

[Pat 110]

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

[PMCPMC]

Originally Posted by Pat 110

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

no help on myasthenia gravis ,left it for consultant but will contact him for an earlier appointment than 7th december.
Picked up on my list of dark thoughts of sucide entering my head daily with all that has happened these last few years.
Referal made to appropriate specialist team.

[PMCPMC]

Originally Posted by Pat 110

Hey Patrick,

I'm sorry you are having such a difficult time right now. It sounds like you are going to get the help you need. It will get better so hang in there. Take care and let us know how you're doing.

Hugs,
Pat

prescribed CITALOPRAM an antideprssant but of course saturday when I took the first ,it interrred with current medication as it acted on my neck as a muscle relaxant .Rang out of hours doctor ,ni help there.
will contact gp today again

[Pat 110]

Hey Patrick,

I hope your GP can prescribe something that will work for you. I hope too that you get an earlier appt. with your consultant so you can get your MG symptoms under control. Just remember it will get better so hang in there.

Hugs,
Pat