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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-04-2009, 01:18 AM | #1 | |||
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LINK
http://209.85.229.132/search?q=cache...&ct=clnk&gl=uk OR SEARCH GOOGLE UNDER ROYAL VICTORIA HOSPITAL BELFAST When I was confirmed as having myashenia gravis because it was a teaching hospital we were visited each day by different groups of students who were getting the opportunity to see a rare neuro disorder first hand .They got the opportunity to diagnosis your condition ,test each of the known symtoms and question you about your feelings. The teaching co-ordinator printed for me and each of the students from wikipedia.org the following pages 1 WHAT IS MYASTHENIA GRAVIS 2 CLASSIFICATION 3 SIGNS AND SYMPTOMS 4 PATHOPHYSIOLOGY 5 DIAGNOSIS 6 ASSOCIATIONS 7 IN PREGNANCY 8 TREATMENT 9 PROGNOSIS 10 EPIDEMIOLOGY & MG INCHILDREN 11 NOTABLE PATIENTS 12 REFERENCES 13 EXTERNAL LINKS ** Last edited by Chemar; 11-04-2009 at 08:40 AM. Reason: NeuroTalk copyright guidelines |
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11-04-2009, 08:50 AM | #2 | ||
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Thank you for sharing
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11-04-2009, 10:53 AM | #3 | |||
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Not exactly sure WHAT is on wikipedia -- but, ever since I discovered that it could be edited by ANYONE -- I don't really trust the info 100%. Here are some guides that are PRIMO!!
http://www.uwo.ca/cns/resident/pocke...uscular/MG.pdf http://www.myastheniagravis.org/guidedetails.htm I ESPECIALLY "love" Dr. Nicolle's guide -- it covers just about everything!! |
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"Thanks for this!" says: | DesertFlower (11-05-2009) |
11-05-2009, 10:49 AM | #4 | |||
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if it could be edited by anyone, why don't we start editing it? alice |
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"Thanks for this!" says: | DesertFlower (11-05-2009) |
11-05-2009, 01:03 PM | #5 | |||
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Alice, I think some MGers have tried that (editing Wikipedia) -- you get into a "tug of war". NOT all MGers "think" the same way -- believe it or not!!
You start having people dispensing medical advice -- and telling everyone that our condition is "totally" treatable with the proper medication. That ALL MGers can live totally "normal" lives. That kind of crap. (Can I say "crap" in here??) |
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11-05-2009, 02:18 PM | #6 | |||
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guess you are right. and "crap" is OK with me. alice |
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11-06-2009, 04:55 AM | #7 | |||
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Me to!!!!
OOOHHH thats what I'm leading a normal life!!!!, which is why my Aunty just told me I sound breathless(oooppps sorry there's my sarcasm creeping back in again :-) )
__________________
Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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11-06-2009, 12:49 PM | #8 | |||
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Sarcasm is good sometimes -- keeps us "sane"!! |
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11-06-2009, 02:15 PM | #9 | |||
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I have to admit that I am not that great in geography and don't really know where it is.
but, possibly if you are somewhere in outer space, you may be able to meet a world leading expert in neuromuscular disease. I have every reason to think that he has been abducted by alliens, as more then 2 years ago, after he recieved the results of my tests, he wrote to me- your test results show of respiratory muscle insufficiency, and you would need to have a muscle biopsy, am in a hurry, but will definitely write to you next wednesday, when I return. so there are two possibilities, either "next wednesday" hasn't arrived yet, or as I have said he could have been abducted by alliens, and maybe if you are lucky they have put him on your planet! alice. |
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11-06-2009, 10:58 PM | #10 | |||
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Alice, you have NO idea how much better you make me feel!!
BEFORE MG, I had such positive feelings about almost every doctor that I encountered. I never minded going to the doctor if I was sick -- was never intimidated -- or nervous. NOW, with all that has happened "thanks to MG", I have "white coat syndrome". My normal bp of 90/60 shoots up to 140/90! I even dread seeing my FAVORITE neuro -- who has done NOTHING but given me quality care and shown me every kindness. All of this "drama" thanks to a bunch of "ego-maniacs" at a BIG-NAME teaching hospital who treated me like a "number" -- a "number" without a brain -- a "number" without feelings -- a "number" without any purpose in life. So, NOW I see that "they" even treat "their own" badly!! I'm pretty sure your doc IS on planet MYGRA -- where he is the unwilling participant of a clinical trial -- bwah-ha-ha!!! |
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