LINK
http://209.85.229.132/search?q=cache...&ct=clnk&gl=uk
OR SEARCH GOOGLE UNDER ROYAL VICTORIA HOSPITAL BELFAST

When I was confirmed as having myashenia gravis because it was a teaching hospital we were visited each day by different groups of students who were getting the opportunity to see a rare neuro disorder first hand .They got the opportunity to diagnosis your condition ,test each of the known symtoms and question you about your feelings.
The teaching co-ordinator printed for me and each of the students from wikipedia.org the following pages
1 WHAT IS MYASTHENIA GRAVIS
2 CLASSIFICATION
3 SIGNS AND SYMPTOMS
4 PATHOPHYSIOLOGY
5 DIAGNOSIS
6 ASSOCIATIONS
7 IN PREGNANCY
8 TREATMENT
9 PROGNOSIS
10 EPIDEMIOLOGY & MG INCHILDREN
11 NOTABLE PATIENTS
12 REFERENCES
13 EXTERNAL LINKS
**

Thank you for sharing

Not exactly sure WHAT is on wikipedia -- but, ever since I discovered that it could be edited by ANYONE -- I don't really trust the info 100%. Here are some guides that are PRIMO!!

http://www.uwo.ca/cns/resident/pocke...uscular/MG.pdf

http://www.myastheniagravis.org/guidedetails.htm

I ESPECIALLY "love" Dr. Nicolle's guide -- it covers just about everything!!

just a thought,
if it could be edited by anyone, why don't we start editing it?

alice

Alice, I think some MGers have tried that (editing Wikipedia) -- you get into a "tug of war". NOT all MGers "think" the same way -- believe it or not!!

You start having people dispensing medical advice -- and telling everyone that our condition is "totally" treatable with the proper medication. That ALL MGers can live totally "normal" lives. That kind of crap. (Can I say "crap" in here??)

guess you are right.

and "crap" is OK with me.

alice

Wow, I never thought about editing Wikipedia. It's actually a brilliant idea. Too bad it wouldn't work. But maybe if we started a new wikepedia subject along the lines of "What Myasthenia Gravis Is Really Like To Have And Barriers We Find To Getting Treatment". Just a thought, but oh my fingers are itching!!!

As for your mg specialist, Alice, my best guess is that he disappeared into the galaxy called, "His Ego". As you can guess, no planet mygra there, although people often think there is a similar one called myas and in their naivete become hopeful, seeing so much tender care sent that way. In actuality, it's a planet named MyA** and it's the best protected planet in the universe - surrounded by vague, hazy clouds of words and herds of lawyers, administrators and residents running several rings around it.

Oops, hope I don't sound bitter. Just trying to keep a sense of humor.

Ally

Hey Motorhead,

I've wondered that too....When I read that Manganese had actually shrunk some people's thymomas to the point that they didn't have one anymore and put their MG into remission, I asked both my neuro. and Surgeon about them...They both basically said that they've never heard of Manganese being helpful for MG/thymoma....It was bizarre considering it was actually a treatment at one point....

"Over here in the U.S., it takes one year or less for a man to be diagnosed with MG and SEVEN years on average for a woman to be. It makes us a little - okay A LOT - bonkers." Annie


WHAT!!!!!!!! Ok, so I am NOT paranoid!!!!

It took me about 5 months to be diagnosed, from start to finish, would have taken longer I rekon if not for my WONDERFUL optician, he continues to look after me and my eyes.