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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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When searching for info on cognitive impairment in MG, I found this journal article/study. YIKES!!!!
http://neuro.psychiatryonline.org/cg.../full/12/4/514 I wonder if THIS is why we have so much trouble with some of our docs?
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~jana |
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"Thanks for this!" says: | DesertFlower (11-15-2009) |
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#2 | |||
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Quote:
do you know what circular logic is? well, if not this article that you have cited, is an excellent example- MG patients are diagnosed as suffering from psychiatric problems (based on what?) and therefore MG patients suffer from psychiatric problems. the only imprortant sentence I would take from this article and distribute to neurologists is - antidepressants should be prescribed with caution to MG patients. and of course that MG patients supress their anger. they have to learn to do so, as if they express it and tell their physicians what they really think and feel, they may end up being put in a psychiatric ward. BTW, I haven't noticed that you have any cognitive impairment, so not sure what you are talking about. alice |
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"Thanks for this!" says: | DesertFlower (11-15-2009), jana (11-15-2009), Pat 110 (11-15-2009), rach73 (11-16-2009), suev (11-15-2009) |
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#3 | ||
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Grand Magnate
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Jana, I'm actually sorry you found this. This is the kind of thinking that makes a patient feel responsible for being ill. It infuriates me. See, I guess I have hidden anger.
![]() Women are often treated as "lesser" people and it's no wonder we are so fierce. Alternating with depression. It may have more to do with hormones than with pscyhosomatic illnesses. Geez. I love that you brought up circular logic, Alice. The old chicken and egg thing. My Dad was an award winning debate coach, so I know all this mumbo jumbo. It appears that the majority of Americans must have MG since so many of them self-medicate or on are anti-depressants!!!! If I had more energy right now, I'd rip that article apart. Like, where's the scientific evidence for what they are saying? Is there a "test" that proves it? They cling so tightly to the tests that prove we have MG or any other disease. But they can say someone has this "connection" without scientific proof? Was I angry since birth, since that's how long I've had MG? I don't have an anxiety disorder. I have PTSD from doctors screwing up and traumatizing me. I have anger from being treated less worthy than a fly of proper medical care. Voila, there is a "connection." As soon as I'm out of toilet paper, I'll recycle this article. Annie Last edited by AnnieB3; 11-15-2009 at 04:52 PM. Reason: To be "green" |
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"Thanks for this!" says: |
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#4 | |||
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Ok, ok, ok -- I held off on saying what I thought about the article -- until I saw what you all had to say. NOT that you were going to change my mind -- my feet are usually stuck in the mud......errrrr, concrete. But, I didn't want to INFLUENCE anybody.
So glad you brought up the chicken or the egg, Annie --- that was the FIRST thought that came to my mind. And, believe me, after I found this article, I DID hestitate to post it. BUT, if it is OUT there -- and the doctors are reading it -- and BELIEVING this CRAP (oops, said it AGAIN) -- then, in our case, forewarned is forearmed.
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~jana |
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#5 | ||
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Junior Member
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Thanks for posting this. It helps to be forewarned. I was told by my first Neuro ( now ex) that all my symptoms ( quite a long list of general MG type symptoms) were 'normal for a woman your age'. 3 weeks later , after shopping and trying to pack groceries away - I fell and cracked ribs. I fell due to my legs collapsing underneath me and cracked my ribs ( and nearly my skull) as my arms did not work to stop me falling. And remember this is 'normal' for a 45yo woman ( who used to ride and prepare show horses and work full time ). And for ALL women .....
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#6 | |||
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YIKES, xanadu!!!!!! It just never stops, does it?? (Wow, ANOTHER coincidence -- lots of horsey people in here!!)
I'm on Google alerts for "myasthenia gravis". I want to see if anybody else thinks this is ODD (click on the link below)??? (NOT gonna tell you why -- let's see if you've got your "thinking caps" on -- hehehehehe!) http://www.alsforums.com/forum/do-i-...breathing.html
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~jana |
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