Yeah, Jana, it's "odd."

And what is REALLY upsetting is that this person has a THYMOMA. Sure, it could be thymoma-induced MG that will go away when the tumor does but still.

How can they be certain it's not MG and is ALS? And if the expert is the one I know, it is disconcerting. I know, we don't have all the facts and we are not doctors. But you have to wonder.

Could this person have a B12 def. due to the thymoma? Mayo did this study a few years ago where they injected radioactive B12 into people with cancer. The B12 went straight for the tumor. Uses it up. So are the symptoms a B12 deficiency plus MG (like I had in 1997-99)? Or something else?

It's all speculation really. I hope they are doing everything to help this patient definitively determine what is "IS" and not just what it's "NOT."

Annie