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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Member
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Hi Erin
mutant no i don't think so not with such a big Heart so you have had swollen feet and ankles would that be fingers and hands as well ............. as thats what ive had even thou I'm now on only 1 Preds every other day from 12 had so many tests as to why but Dr can't find a reason im seeing my Neuro in a months time so will see and my weight still hasnt come down darn it !!!!!!!!! hope your back to normal for Christmas as its not long now mum and kids are well my plan is to go to Australia next year when my granddaughter is born thats my hope yes cold but nice breathing good but body gets very weak again and some days are great stay happi alan ![]() |
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#2 | ||
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Junior Member
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Man that plasma exchange was rough on you!! I hope you get to feeling better really fast!!
Kristy |
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#3 | |||
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Senior Member
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Hi sweetheart!
![]() I AM a mutant! ![]() My fingers have gotten a lot bigger! I used to wear a size 5 ring and now I have to wear a 7 or it cuts off my circulation! ![]() I just want to FEEL like a woman again! LOOK like a woman again! My hubby has been so amazing but this walker and all of the weight has made me feel so - well - ugly! This darn pred has just given all of us heck! ![]() I bet you can't wait for your trip! A new grandbaby and Australia! How exciting! ![]() I would LOVE to be in England right now! I would so love a true white xmas! ![]() I'm glad to hear your meds are being tapered - I'm down to 20 mgs of pred with 200 mgs of cyclosporine - brutal stuff........... Can't wait to hear from you! Love, Erin ![]() Quote:
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Erin . |
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