Erin, I hope the doctors will figure out all that is going on. I really think they're still missing something. Sorry the plasma didn't go well. Your reaction worries me. Have they done an ankle brachial index on you? Have they looked at other arteries as well? It's not funny but kind of "funny" that you kept on telling them you had a back issue and they kept on insisting you didn't.

Have a good holiday.

Annie

Hi hon!

I think they are missing something as well - my reaction was really weird - you should have seen my feet! They were literally cracking under all of that water weight.....it was really painful!

No ankle brachial on me. I'll ask for one. I did have a doppler done when all of the swelling began and it was OK.

I am still mad that I kept insisting that my back was really hurting and was kind of blown off by the "experts".......

How are YOU? Did you have a wonderful Thanksgiving?

Love,
Erin

Hi Erin,

wow, great to see you back and replying to everyones posts!!!
You have been through alot lately you poor dear. why is it that dr's don't seem to listen to us, I mean we live with our bodies everyday!!!
I remeber when my neuro said I was depressed, when I was having huge neck problems. Well I mean of course I was depressed, but it wasn't causing my neck problems. We have a better understanding of each other now!!!
I'm off to Perth for a sleep study on Sunday, as I'm waking up feeling I havn't slept at all lately. My gorgeous big sister is taking me up, so we will be spending time together, which always makes me happy.
Hope you are doing ok today, thinking of you
take care
Kate

Hi Erin
mutant no i don't think so not with such a big Heart
so you have had swollen feet and ankles would that be fingers and hands as well ............. as thats what ive had even thou I'm now on only 1 Preds every other day from 12 had so many tests as to why but Dr can't find a reason im seeing my Neuro in a months time so will see and my weight still hasnt come down darn it !!!!!!!!!
hope your back to normal for Christmas as its not long now mum and kids are well my plan is to go to Australia next year when my granddaughter is born thats my hope yes cold but nice
breathing good but body gets very weak again and some days are great
stay happi
alan

Man that plasma exchange was rough on you!! I hope you get to feeling better really fast!!

Kristy

Hey hon!

THanks so much for your kind words! How are YOU?

Love,
Erin

I am doing fine.. Last week was my first ever round of IVIG and it worked great! I see now why you call it go go juice!! Good stuff! They gave the option of starting with Plasma Exchange and now I'm glad IVIG was chosen.

Take care of yourself and I hope you get better sooooon!!


Kristy

Hi sweetheart!
I AM a mutant! LOL!
My fingers have gotten a lot bigger! I used to wear a size 5 ring and now I have to wear a 7 or it cuts off my circulation!
I just want to FEEL like a woman again! LOOK like a woman again! My hubby has been so amazing but this walker and all of the weight has made me feel so - well - ugly!

This darn pred has just given all of us heck!

I bet you can't wait for your trip! A new grandbaby and Australia! How exciting!

I would LOVE to be in England right now! I would so love a true white xmas!

I'm glad to hear your meds are being tapered - I'm down to 20 mgs of pred with 200 mgs of cyclosporine - brutal stuff...........

Can't wait to hear from you!

Love,
Erin