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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-05-2009, 05:31 AM
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tHello all!
I am hoping someone can give me some advice. I have been wakiing up with horrible charlie horses that go from the tips of my toes to my fingers. This pain is driving me CRAZY!  You can actually see my muscles shake when I am having one of my episodes...it is so strange! I HAVE had these b/4, but the 1st time I was so anemic I needed a blood transfusion. After that they were few and far between but still scared the crap out of me. I have blood work done all of the time and it is always within normal range, so I have no idea what is causing this; what I DO know is that I am at the end of my rope! I am also using a walker now b/c I can't put any weight on my left leg. It just hurts too much. I was recently dx'ed with piriformis syndrome but feel like something else is going on. I went to Walmart the other day - big mistake - and was in so much pain that I was glued to the floor asking for help - no one helped me!  Even WITH the walker the pain is horrible! I am on 3 different pain meds right now, but feel that I NEED a round of IV IG as the pain is just exhausting. That last round of plasmapherisis just wiped me out! My left leg and foot is still swollen - though not as bad as b/4. Has ANYONE else experienced this? It is REALLY messing with me! I am thinking about getting a Hoveround or some other machine like that, but don't want to "give in" to MG. Erin  P.S. There is some good to come out of this; my nail guy was so sweet and gave me a FREE face wax and nail polish b/c I told him I could no longer afford to have it done, and my girlfriend is coming out today to give me a new fresh "do" - some people have been so very kind!  
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Erin . |
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Help!!!!!!
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