Hi,

I just found this site and I'm really hoping I can find some support here. I've had MG for about 2 years, and I have yet to meet anyone else with this disease. I often feel very isolated and alone. Right now I'm on Cellcept and doing plasma pharesis at least once a week. I had a thymectomy in Oct of 2007 because I had a tumor. I've also tried Mestinon which didn't do anything except make me drool, and IVIG which made me feel quite ill and didn't really help. The only thing that has really helped is the plasma pharesis, but I'm still symptomatic and am now considered to have refractory MG. Now the docs want me to try Rituxan, which scares me to death because I can't find much research on it and what I've found indicates that there are some potentially fatal side effects. Does anyone here know anything about rituxan? Do any of you know of any research that indicates the success rate with sero-negative MG and/or what the percentages are for side effects? Any info anyone has would be greatly appreciated. And if I can provide support to anyone else, please feel free to contact me.

Thanks for reading. I appreciate you taking the time. I wish you all good health.

MK