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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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12-25-2009, 07:51 PM | #1 | |||
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Tomorrow is my flight back to North Carolina, sorta anxious about it, because i assume there will be cancellations, and delays due to snow which wont help the MG.
But im taking it hour by hour Lately, or every hour or so my eyelid, and eye spasms, which im not realy sure what that means, do any of you have that problem? I always have muscle spasms, i hate it. But it could be worse. Why is the pred. not working on my eyelid? Im having a hard time keeping it open, and it sucks, and my breathing has gotten worse since ive been here, but not by alot. Just confused to why after 3-4 weeks on the pred. why its not doing as much as people pray to. Im having to take a nap everyday, and just overall really tired. Why is that? The plasmapheresis isnt working as well as it did last time.. Hope you all had a great christmas! i did. talk to you soon. |
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