Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-13-2010, 01:06 PM #31
DesertFlower's Avatar
DesertFlower DesertFlower is offline
Member
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Smile

Quote:
Originally Posted by dog lover View Post
have heard of others having high platelets and MG? Wow that makes me wonder too if there is a connection?
In 2003 I had high platelets...but not enough to be a problem according to my doctor, just something to keep an eye on. I haven't had them tested since so I don't know if they are still high. I wonder too if there is a connection.
__________________

.
DesertFlower is offline   Reply With QuoteReply With Quote

advertisement
Old 01-14-2010, 10:56 AM #32
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default Moonface and other prednisone side-effects

Nicky,
First of all I laughed out loud at your comment about your ginormous head!!! I sooo know the feeling of being vain about all these side effects!!!

The Dr wasn't sure it was bacterial. She said since I was scheduled for my repeat chest scan 2 days later it would show up in that but we ended up having a major snowstorm and I had to reschedule. My Neuro thinks I am just having trouble kicking it because of the pred. My immune system is so supressed it is having a hard time fighting off the infection. I KNOW smoking doesn't help. I have a RX for Chantix but it is $156. for a 28 supply and insurance doesn't cover any of it. I am hoping to get that filled here in the next week or 2.

I think I remember Erin saying something about high platelets too now that you mention it.

Yes taking meds every 3 hours stinks!!! I never dreamed I would have to take so many different meds. Sometimes I wonder if part ofthe reason I feel so bad is from everything my body is trying to absorb.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
Old 01-14-2010, 10:58 AM #33
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default Moonface and other prednisone side-effects

Pat,
I appreciate the info and didn't think you were being a mother hen at all. I always appreciate the input.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
Old 01-14-2010, 11:00 AM #34
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default Moonface and other prednisone side-effects

DesertFlower,
Have you thought about going in to see if they are still high? If you do please let us know. It is strange that there are several of us who have high platelets!
Kendra
dog lover is offline   Reply With QuoteReply With Quote
Old 01-14-2010, 01:16 PM #35
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Default

It's okay, Kendra...I was trying to be a bit funny about the 'ginormous' head thing...It makes me feel better to laugh about it...Actually, when I saw my pics. on facebook, I was LOLing- big time...My mom's like, 'you shouldn't be so critical of yourself!' But it made me feel better too see it as a temporary, humourous thing...hehe

Oh no! I don't want to be a downer, but I don't know about the Chantix...My doc. suggested this to me before too, but when I read about the side-effects people were experiencing, I decided against it...They might be increased with the pred. and an SSRI too because it is a type of anti-depressant as well...But that's just me, and I tend to get worried about such things...But it might be totally fine and work great for you, which would be excellent!
Nicknerd is offline   Reply With QuoteReply With Quote
Old 01-14-2010, 10:18 PM #36
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default Moonface and other prednisone side-effects

Nicky,
You are not a downer at all!!! I talked with the Dr about the side effects and she checked everything out as far as interactions with other meds and the MG. I gave it some serious thought and decided to take my chances. I just don't think I can quit without something like this. I am usually such a strong person who has the will power to do anything but these d*** cigarettes have won everytime in the past. It has really gotten to a point where I fear if I don't quit I am going to die. My breathing is so labored at times and I feel short of breath and my heart races. Whether the ILD is smoking related or not I need to give them up in the hopes these issues will get better. I haven't fill the rx yet but will let you know if I have success with it.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (01-14-2010), PMCPMC (01-16-2010)
Old 01-18-2010, 12:25 PM #37
DesertFlower's Avatar
DesertFlower DesertFlower is offline
Member
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Smile

Quote:
Originally Posted by dog lover View Post
I KNOW smoking doesn't help. I have a RX for Chantix but it is $156. for a 28 supply and insurance doesn't cover any of it. I am hoping to get that filled here in the next week or 2.
Kendra,

My dad smoked and had a hard time quitting, he finally switched to some herbs. He said it worked great for him. He drinks teas and uses herbal chewing tobacco now. He said that the craving for nicotine never goes away but that the herbs satisfy the cravings.

Today I saw an article on these herbal substitutions and thought you might be interested. Be careful since some of these herbs have side effects that might be bad for MG.

http://davesgarden.com/guides/articles/view/2773/

I was looking for teas that might help my possible chest cold. I can't figure out if I am sick or not. My chest area muscles are so tight I feel like I have bruised ribs. I do have a slight cough so I though some tea would help.

I hope your bronchitis has gotten bettter.

I am curious about the platelet thing. My dad's family has a history of blood problems...and my grampa died from a blood clot in his knee (when I was a teenager).
__________________

.
DesertFlower is offline   Reply With QuoteReply With Quote
Old 01-18-2010, 06:31 PM #38
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default Moonface and other prednisone side-effects

DesertFlower,
I will check this out. I believe your dad is right that the craving never goes away. My dad quit about 25 years ago and told me that when he sees someone smoking it still makes him want one. I would be totally open to using herbs. I'll be sure and check them out first to make sure they won't interact with the MG.

Hopefully you're not getting sick. If you're like I am you kind of feel like something may be coming on but you're not certain until you have clear cut symptoms. I know it is worrisome to not know if you have overdone it and are dealing with an MG flare up or if you have picked something up. I did finally get over my bronchitis and sinus infection. It made me sooo sick that I couldn't hardly do anything for about 10 days. I definitely learned my lesson about working more than I can now handle.

I am curious about the platelet issue too. I have never been able to find anything that shows a connection between high platelets and MG but I need to spend some more time researching that. If I find anything I'll let you know. Thanks again for the link!!!
Kendra
dog lover is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (01-18-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
TN and medication - side effects albot Trigeminal Neuralgia 1 08-17-2009 07:55 PM
Statins and their side effects BobbyB ALS News & Research 0 05-14-2008 06:32 AM
Side Effects of MS FunkieChicken New Member Introductions 7 04-27-2008 02:04 PM
Side Effects BaxterTheBunny The Stumble Inn 11 03-03-2008 08:05 AM
What side effects? shari Medications & Treatments 4 10-09-2007 11:07 PM


All times are GMT -5. The time now is 05:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.