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01-17-2010, 09:15 PM | #81 | |||
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Allen,
The way you describe your experience after the IViG is the exactly how I feel after PLEX. Doesn't it feel great to feel almost completely normal again? I'm really happy that this worked for you! Enjoy the game! Nicky P.S. I also don't have to take mestinon to operate after PLEX. I just take the mestinon SR before going to bed. P.P.S Congrats again! |
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01-17-2010, 11:07 PM | #82 | ||
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I didnt want the headaches to start, so I took a mestinon at 9:40, I was still watching tv, and I guess I Pushed a bit too far.
I just took another 15mg, only because when I close my left eye my vision in my right eye was starting to go completely blurry. My wife says she thinks my right lid has a tiny droop to it, not anywhere as pronounced as it was in the beginning, but maybe I have to adjust. I did have fantastic vision this morning, my eyes were wide open and looking up was absolutely no challenge, so Im a bit confused. I wont lose all hope, Ill see how I feel tomorrow, and certainly wont strain my eyes like I did today. |
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01-17-2010, 11:32 PM | #83 | ||
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Quote:
I must retract this statement somewhat. No one on the staff treated me any different than any other patient, I guess its just a bed thing, its there or not there. I did notice a few looks like wow, hes up out of bed using his laptop alot, he looks pretty good, does he belong in this bed for a week? who knows, but I post what I feel at the moment. |
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01-18-2010, 01:06 PM | #84 | ||
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Im not sure how long a wait people are supposed to wait after resuming normal activities after a 5 day hospital ivig stay, but Ive spent the last 2 hours outside in my wood shop and I feel totally exhausted, might have to call it a day. Maybe the lack of activity all week has me a bit weak. dont know
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01-18-2010, 01:27 PM | #85 | ||
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Allen,
2 hours working in your wood shop is awesome! Yes, it would be trying on a healthy person but to have just been in bed for a week and have MG, 2 hours is great.. LOL, I am just happy I got to shave today Now I will rest and go to Lowes and price items for home improvement come spring. We all just do a little at a time, until we can do more |
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01-18-2010, 11:01 PM | #86 | ||
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been feeling like I came down with a flu, chills, very weak, muscle cramps.
I think I overdid it today, thought I was feeling ok this morning. Will get some rest, gotta go back to work this week. |
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01-19-2010, 08:25 AM | #87 | ||
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woke up day 3 out of hospital, stiff muscles, aching back, a bit of energy, but I wont dare push it today.
Been having some leg spasms that are doozies. Hamstrings tighten up, maybe from lack of use, maybe from ivig, I dont know, but those hurt like hec, gonna take a short car ride this morning, go out for a early cup of coffee and sandwich, and call it a day, going back to work in a couple of days, and I dont have the option to take off anymore. I didnt realize the effects last for days after I got out. had the chills most of last night, just couldnt get warm, and my fat body is never cold, and the lack of energy and wasted feeling was horrible. |
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01-19-2010, 10:57 AM | #88 | |||
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Quote:
__________________
~jana |
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01-19-2010, 01:13 PM | #89 | ||
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1.5 liters or bottled water each day, at least another liter in soda or juice, and yes, my 2-3 cups of coffee each day also.
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01-19-2010, 04:32 PM | #90 | ||
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3 full days out, and although I was so optimistic and thought I was feeling better, my eyes seem to be right back to the same spot they are usually in.
Im not giving up, Im going to be patient. |
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