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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-20-2010, 04:04 PM | #1 | |||
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Hi Jana
Well I'm still confused about our breathing and the different problems we all have and the crisis so glad ive never had one just over a year ago i had a scary time when i was working i had to shovel some corn in a pit but within a few minutes it became very difficult to breath so i managed to get out and for a few minutes struggled getting my breath i was taking huge breaths but it took time to get back to normal but after that i knew when i was going to have a problem later had the swallowing problem and talking but after going on preds' things improved after a year on them im now off all my drugs and doing okay but if i was to walk fast i would then have a job to breathe saying all that i can sometimes walk miles other times i can't walk at all . like you its getting to know what works i still volunteer to work for 2 to 3 hours each week alan |
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01-20-2010, 06:03 PM | #2 | |||
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It is so weird, you are right -- to sometimes be ok -- and sometimes not be able to put one foot in front of the other. It is so nice that you are volunteering -- so heartwarming to hear of things like this!!
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~jana |
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