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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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So, you all should be proud of me for not excersizing for 2 weeks now. Yet this weekend, ive done too much i think and even am having trouble walking from room to room. My pulse goes quite high and its harder to breathe.
Yet Im okay, and i start plasmapheresis on wednesday, I assume for 6 sessions like always. IM SO ready to feel better, and get in to see a specialist at duke. So nice. I was doing better yesterday, and when i dont do anything, i feel great. but when i try to hang out w friends, or even go to school, a 3 hour nap is requiered before/after. My muscle spasms are about the same, maybe a little less frequent, yet i dont think the pred. is going to work, and my doc said cellcept and imuran are next. How are you all feeling? |
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